Jump to content
Mary Beth

Feb/March/April 2019 CI surgery and/or activation

Recommended Posts

My activation was 15 days after surgery. No issues except that the Sonnet was a little irritating behind my ear. I just wear it hooked over my glasses now. My Rondos just came in though and I am exchanging my Sonnet for the Rondos. Happy about that. I really don't like my glasses and the Sonnet behind my ear. I like to run and it kind of shakes around and makes a lot of noise when I am running. I am hoping that a head band will secure my Rondo better and be more comfortable.

Share this post


Link to post
Share on other sites

@Monte

I wear my Rondo 1s secured while diving through ocean waves and riding them back to shore and my Rondo 1s stay in place perfectly.  Rondo 2s are so much lighter so it should be even easier.  Hoping it works as well for you!

Share this post


Link to post
Share on other sites

@Monte

Will you end up with both Sonnets and Rondo 2s or are you swapping to end up only with Rondo 2s?

 

I sure am getting excited about the Rondo 2s!

Share this post


Link to post
Share on other sites

Just going with Rondo 2s. Swapping out my Sonnet.

Share this post


Link to post
Share on other sites

Just checking in on you all.  

@Kylie any date for surgery yet?

@Monte hope all is still going great!

@Shaun when is your activation?

@GraniPeggy hope all is still going great!

@JohnL wishing you the best on your surgery on Tuesday

@Andy wishing you the best on your activation March 12

Share this post


Link to post
Share on other sites

Still going great. I notice that in a crowed, noisy environment, my Rondo 2 picks up a ton of back ground noise. I tried using my Roger Select and set it to "T" only and it cuts out a lot of the noise. Any ideas how to cut down the excess noise from the Rondo 2 mic?

Share this post


Link to post
Share on other sites

@Monte

Try using your Fine Tuner to decrease sensitivity.  Press the button all the way on the right of the Fine Tuner in the second row repeatedly to decrease the size of the sound bubble your Rondo 2 is picking up sound from.  It looks like an ear with three smaller sound waves.

 

Some people have their audiologists create a special program to use in noise and then they just use their Fone Tuner to switch to that program.

 

@Joan You have a special program to use in noise right?

Share this post


Link to post
Share on other sites

@Mary Beth @Monte yes, I do have a “noise” program that was put on my Fine Tuner by my audiologist. It is extremely helpful in significantly reducing or eliminating background noise, especially in noisy restaurants. I do not know what my audiologist did to “create” the program; however, I do think most of our audiologists know exactly what to do to create such a program.

 

Share this post


Link to post
Share on other sites

@Mary Beth No date yet! I have never checked my mail box so regularly... They said by the end of March, so I really should hear soon!

Share this post


Link to post
Share on other sites
6 hours ago, Mary Beth said:

Just checking in on you all.  

@Kylie any date for surgery yet?

@Monte hope all is still going great!

@Shaun when is your activation?

@GraniPeggy hope all is still going great!

@JohnL wishing you the best on your surgery on Tuesday

Thanks Marybeth. I’m scared,excited and a whole host of other emotions. 

Share this post


Link to post
Share on other sites

@JohnL

I remember all those feelings very well!  Hang in there.

Share this post


Link to post
Share on other sites
On 3/7/2019 at 8:01 PM, Mary Beth said:

@JohnL

I remember all those feelings very well!  Hang in there.

Well, surgery complete and Home recovering. So far, so good. Pain is tolerable, no increase in tinnitus (yet), and I can still taste my wife’s delicious food! The only downside is I can’t tell if he was able to retain any residual hearing. The surgeon performed a canal up mastoidectomy and “packed” my ear canal  and I have to wait until I see him in a month for it to be removed to be able to tell if there is any hearing left. That was a surprise  I thought I would wake up and know right away. But I guess I’ll have to wait  

 

Share this post


Link to post
Share on other sites

Congratulations @JohnL.  Rest easy.

Many times people can not tell how much residual hearing they have even without the packed ear canal due to fluid from surgery.

When is your activation?  Same day as having the packing removed?

Share this post


Link to post
Share on other sites

YesI. Activation and follow up with surgeon same day April 11.  Although strangely activation in the morning, surgeon in the afternoon  

Share this post


Link to post
Share on other sites

Well I went last Thursday to Vanderbilt to be evaluated for a C.I. in my right ear. For those of you who don’t know I had spinal meningitis when I was 10 years old that caused me to loose my hearing. I started wearing a hearing aid in my right ear but a hearing aid would not help my left ear. I got implanted in my left (bad) ear in 2009 and kept wearing a hearing aid in my right (good) ear. After the implant I was disappointed because I couldn’t make things out with my implant. It took about 6 months to a year before sound started making sense in my left ear and as time went on my left ear became my dominant ear. 

Now I got evaluated for a implant in my right ear. Below is my test results. 

AZ Bio Sentences (Quiet):
Right HA (list 1): 11%
Left CI (list 2): 87%
Bimodal (right HA + left CI; list 4): 91%

AZ Bio Sentences (Noise, +5 SNR):
Right HA: Did not test due to performance in quiet
Left CI (list 3): 55%
Bimodal (list 5): 55%

CNC Words:
Right HA (list 1): 6% words / 30% phonemes
Left CI (list 2): 74% words / 86% phonemes
Bimodal (list 3): 72% words / 87% phonemes

the doctor is making the recommendation and waiting for insurance approval so we will see. 

Share this post


Link to post
Share on other sites

Looks like your HA ear is not helping much so hopefully you will be approved.  I am very happy I went bilateral.  It is amazing!

Wishing you the best!

Share this post


Link to post
Share on other sites

Thanks @Mary Beth  my hearing aid helps give me some spatial awareness but as far as speech goes my implant is the winner  

I also forgot to mention that my left ear had no stimulation for over 20 years when I received the implant.  So I am sure that contributed to the long time it took to make sense of sounds. 

Share this post


Link to post
Share on other sites

Good luck, @Percy!  I hope you get your approval.  I had an appointment at my audiologist's today and when I arrived at the clinic building there was a woman leaving - in a wheelchair, because she had apparently just had bilateral CI surgery, she had what I call hubcaps and @Monte called his ear bra on both ears.  I wanted to wish her luck but I'm quite sure she wasn't hearing anything at that point.

Share this post


Link to post
Share on other sites

@Percy  My right ear had no hearing at all for 24 years before being implanted.  @VeroNika also had long standing complete deafness before her implant.

Isnt it just amazing how these “dead ears” can hear with our CIs?

Share this post


Link to post
Share on other sites
Just now, Mary Beth said:

@Percy  My right ear had no hearing at all for 24 years before being implanted.  @VeroNika also had long standing complete deafness before her implant.

Isnt it just amazing how these “dead ears” can hear with our CIs?

@Mary Beth They weren't dead, they were asleep and waiting.  🙂

Share this post


Link to post
Share on other sites

And I am sooo glad they were asleep and waiting!  Still blows my mind every morning.

Share this post


Link to post
Share on other sites

And amazingly, being able to hear seems like normal to me now.  I was afraid of adjusting to the sound levels, but not having my processors on, just being unable to hear, I don't like it anymore.

Share this post


Link to post
Share on other sites

I am hooked on sound.  I love it all!

@Mary Featherston How did your appt go?

Share this post


Link to post
Share on other sites

@Mary Beth seems to have helped.  We turned down the higher frequencies on the left, and turned down the low frequencies on the right just a bit and shifted the frequencies a bit also on the right.  It seems to have helped with the distortion but I usually wait at least a couple of weeks to let me get used to the new map.  In April the Med-El clinical specialist will be back in town and my audiologist will be emailing me about an appointment with her.

Share this post


Link to post
Share on other sites

@Mary Featherston

Who is the CAM for your region?

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...

×
×
  • Create New...