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First CI surgery in 3 weeks. New to forum.


lizjlong
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Hello everyone!

I am new to this forum. Just set up my profile. I am scheduled for my first CI surgery (right ear) on April 12th. I'm a bundle of different emotions right now. Excited, anxious and terrified.

I am trying to stay focused and positive. I have read a lot of the comments here in the forum. I have also done my research on Cochlear implantation and have spoken with a few recipients. It's been overwhelming for the most part. Everybody has a slightly different story. I am receiving my first CI in my worse ear and I'm getting the Rondo 2. I live a very active lifestyle and It's been quite a concern for me how having the Rondo will work out. I'm very hopeful it will be great.

Part of the reason I wanted to join this forum is for support from people who know what it means to be hearing impaired. I am surrounded completley by hearing people. My family, my son, my boyfriend, friends and co-workers. While they have been great, it's really not something a hearing person can understand. It's been somewhat isolating because of that. I'm hoping in the coming weeks to talk with anyone that has any advice for first time recipients here. I would greatly appreciate it.

Lizūüėä

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@lizjlong Hi, Liz, and welcome!  I'm glad you joined us.  Rondo2 should be a great choice for an active lifestyle.

I think someone else here is having surgery on April 12th too - we will be waiting to hear from both of you!

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@lizjlong

Congratulations on your CI surgery date.  Exciting!  I have bilateral CIs and they have been life changing.  Check out our topic on rehab.  Aural rehab helped me a lot!

Which CI center are you using?  I go to NYEE in NYC.

Wishing you the best!  Welcome to HearPeers!

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I will check out the rehab topic. I have been told how very important it is. I'm not sure what you mean by CI center? I'm receiving a Med-el Rondo 2 in my right ear via outpatient surgery at a hospital here in Central FL. I have been told that it takes roughly 4 weeks post surgery for activation and this will be done by my Audiologist. I will then continue to see her as adjustments need to be made. Is there a rehab center outside of our Audiologist that we should make use of?

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@lizjlong

Sorry for any confusion.  I just meant where are you getting your CI ?  New York Eye & Ear is the CI center I go to.  My surgeons and audiologists are all at the same center.

Most of us just work with CI surgeons and CI audiologists.  A few of us work with specialists on aural rehab too but that is not common for adults in the US unfortunately.

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Hi Lizjong, you should be getting both units from Med-el including the behind the ear unit unless Med-El stopped that offer, I have the Rondo 1 seeing my implant was done 3 1/2 years ago. pay attention to these Gal's they know what works and what is rumors, I just changed from WMU to UM here in Michigan to improve my experience with my product and am so happy I did. your support team is so very important like Mary Beth mentioned and no question you ask of your team they will have a answer or try to make corrections to help you. You will be amazed how much you have been missing.

Good Luck

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@ept5777 The PlusRondo promotion ended in November.

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@ept5777

Terrific that you are now working with a CI audiologist that seems to be a great fit for you!  That is so important.  I would be lost without the awesome skills of my CI audiologist.

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Welcome, Liz! You're a bit ahead of me in the process. I look forward to reading about your experiences as a guide. Good luck!

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