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Mary Beth

Tinnitus that started after implantation/activation

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Hi all

 

A CI researcher is interested in learning more from CI users who did not have tinnitus before their CI but do have tinnitus that started at CI surgery/activation.

This is not very common.

 

@Valentin you mentioned this happened to you correct?  Are you interested in sharing your experience with the CI researcher?

 

Has this happened to anyone else?

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Why not. If any day someone reach a solution for reduce or eliminate it with no colateral issues. I think it wold be genius

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I’ll send you a mail message here @Valentin

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I acquired it 3 months after activation. Do you have more details about this research project?

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@Watersail

I can put you in touch with the researcher if you private HP mail me your FB username or you can FB messenger me and I will connect you.

I do not have any info.

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I was just thinking about you and this subject Mary Beth...I have had tinnitus for years...really loud. It is so much louder 5 days post op. I am struggling with it today. Was your experience similar? 

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@DncTchr2

I have had tinnitus since my early teens.  It changed and varied quite a bit post CI surgery but then it settled down.  After activation it was no longer noticeable while the processor was on but at bedtime when I removed the processor it went crazy.  I told myself it was my ear/brain reacting to all the new stimuli it processed that day and just embraced it.  That went away completely as I got used to the CI.  Sometimes after a new MAP, it would happen at night again for a few days.

My tinnitus is so much better compared to before CIs.  

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Good to know...I know everyone has different experiences, but it is something to hold on to for now...I am a bit emotional/tired today too, which is not helping. I had mostly adjusted to it pre CI, but the past 2 days have been off the charts loud and my head hurts a bit today...I think I might need a nap! ;) Thanks for being so supportive...

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@DncTchr2

naps are always good.  Smile

Are you using a speech to text app while you wait for activation?  Most are free.

Android:  my favorite is LiveTranscribe 

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I do not...I will look into it after my nap...thanks very much for the suggestion...two weeks until activation. My husband and I have been texting...funny, first time he texted me I started to text him back forgetting he can hear what I am saying...a much needed laugh yesterday! :) 

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LOL!  Hang in there.  The time between surgery and activation is difficult for many of us.  We understand.

@DncTchr2

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Thanks...I will. I was doing pretty good until today actually. I'll get it back...thanks again!:)

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Just had my surgery 2 days ago and I never before had tinnitus more than 10 sec at a time and not often. Now after surgery I hear a constant hum. Like fan blades going round and round. Driving me nuts!

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@wpeters

congratulations!

Hopefully your tinnitus will be short-lived.

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Are there any documents or files so I can study these studies?

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