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My journey begins...


kaztrekie

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 Ok so I am starting this day of surgery because well I need to calm my nerves,

As I promised myself I have not eaten since last night I could of up to 6 hours before hand.but owing to past experience have said no

To that one. The kids are off to ,

one for the night and hubbie is coming back to look after son

Who is autistic and won't stay with anyone hopefully I will be coming home with hubbie but will see.

Got overnight bag packed,train tickets ,iPad! And all set I will post again soon...

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Ok dat two after op the hospital and staff were great the hospital was spire leas Cambridge and if anyone gets a chance

To say this where I want it done do so.

I am having a bad recovery was sick from waking up onwards had injections to help with this they did nt seem to,

and I must have a

Bad pain threshold

Thank heavens for painkillers I have slept a lot as well and the dizziness is bad but apart from all this pleased I

Had it done the surgery went well and dr Gary said I should et really good results from

The implant should it work.

The kids go back to school today ut hubbie is home as well so that will help will update when feeling more myself.

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No idea why this keeps posting my posts twice sorry about this could be because I am using I pad

If a mod could sort please thanks ,went out for a bit today and feeling much better less dizzy

And only needing a couple of painkillers earlier ,got shopping hubbie

Got me flowers :) otherwise a good day have had to move check up day as

No one to look after kids so going week after now.

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Hi Karen, glad the op went okay, I'm guess I'm lucky with after op as I don't normally suffer from side effect, have plenty of rest, enjoy and take it easy (are you listening hubby lol!) Have notice with my ipad does funny thing with the forum, I can't edit or quote with the ipad and yet I can with my pc!

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Hehe hubbie was reading got him doing bits and bobs round the house. Have got the most annoying feeling in implantation ear like its full of water

Been told this is normal and will fade,apart from that pain going away nicely

Slight matallic taste in mouth but that's meant to fade as well ,everything else looking good

Might not tell hubbie yet he might stop helping!!!

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After feeling bad yesterday spent most of it laying down I am off the painkillers today

Because they seem to be causing my dizzeyness ,if I can cope without them I will

So far so good no dizzy spells yet took kids to school no problem and have done small bit

Of housework.ill take some at bedtime sleep not easy ATM and see how it goes.

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That's normal for any operation, about 2 weeks you start to feel a bit stronger, sometime I haven't got the energy to walk up the road! Was told it's to do with the anesthetic in our system, have got a slight pain now and then and that might be because the swelling is down to normal therefore taking Co-codamol as and when.

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Feeling much better today went to town for a bit

And cleared up my house a bit hubbie tried I think hehe

Son keeps trying to hug mummys ear better !! I tried to tell him it's the other one

He's not falling for it.

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Ok not good today dizzeyness back in force I. Can't really get up let alone

Do anything usefull yesterday I was fine ths s gonna get annoying

I know I should be paient and it will clear but my body

Doesn't seem to like that idea.

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1 week after implant feeling ok today but to rushing it phoned doctors they said dizzeyness was normal and to rest

Try that with two kids! But stitches and head don't seem to be bothering me today

Just waiting now to have x ray and see surgeon then hopefully get activation date.

Hurry up the 27th

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Have you got stitches?  haven't got any and they used glue for me!

 

Not sure why though

 

 

 

 

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Wow no I had stitches about 5 of them only got a couple left now ,how come they used

Glue it's a deep wound never heard of that before my daughter had glue when she cut her

Head open and that was a small wound but I thought for surgery you would need stitches

As long as its healed ok but I would check with the surgeon and ask maybe they

Managed to only do a small amount of cutting.

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Ok did small amount of research there is new way they do surgery which involves a small incision on

4/5 cms and only requires glue to heal ,I have a full size incision of about 2 inches

So I think you got the new operation would also explain why it was less painful

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Mine is over 5cm but under 10cm they may have tried the glue to see if they can get away with it! They used the same incision cut from the perforated ear drum op about 6 wks ago and the centre of the implant magnet which I can feel is not high about 30mm above the top of the ear which I'm pleased about as I did ask them if possible to keep it down lower but wouldn't promise me. I like to keep it out of sight under my hair to start with but that's me!

 

Just back from Addenbrroke's, post op check and x-ray, have asked them to send me the x-ray photo via my email! Looking at the x-ray they have managed to get all the electrode arrays wire all the way in the cochlear! Now depends on what I will hear from the mapping sessions, got loads of appointments now so don't make any plan yet!

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I'm so excited got my X-ray date next Friday but also my activation dates

Which are the 10 th and 11 th oct I can't wait been dancing round house

Have also got another app for the week after I'm so excited

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On the X-ray appointment, you'll get another 6 appointments this year, 3 x 2 appointments on the same day, so 3 more dates for your dairy!

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They have given me two appointments on the 10th and 11th and another on the 15th

My diary is getting nice and full got a little confused because spire lea gave me a

Appointment as well as Addenbrokes been told don't need the spire lea one now.

So lost one gained three. :)

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  • 2 weeks later...

Today was my x ray at Addenbrokes which went great all the electrodes are in place

And it looks good though I must admit seeing it on the x ray was about

Odd to think that's in my head!!

They took out the last remaining stitch hitch was bugging me and she said

The wound etc was helping nicely and I had a great surgeon :)

My hopes are already up for my activation even if it doesn't work at least I have tried this

If I hear beeps it will be great anything else I ll just be dancing round the room :)

Apparently the surgeon used soft surgery in order to save what hearing he could in that ear

Well that did nt work as I lost what little there was there but never mind because it doesn't make that much difference to me,

Waiting game now till activation :)

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  • 2 weeks later...

Thought I would post a quick update,today the nerves are really setting in about activation on Wednesday

Not sleeping well and am worried which I am told is normal!!

Questions like what if it doesn't work,what if I need another implant does my audiotery nerve work

Etc etc et keep running though head

Tomorrow I am going out for day Sunday doing housework

Monday and Tuesday I will prob just panic and as or we'd

I will let you know

Fingers toes etc crossed

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Understandable, this was one of my question I asked the consultant, they would not do any implant surgery if there's a chance you may not hear out of it. Although we may not hear all the 12 electrode arrays sounds but even it's 50% is still good! Remember when the first cochlear implant started there was only 1 electrode array and they coped okay!

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Two days to go and the nervousness is giving way to excitement. Switch on is at 9.00 am

On wed the kids are going to my mums before school only problem with

Not driving the trains are so early zzzzzz

Hopefully on wed night I should be able to hear little things round the house

And on Thursday back again for programming and rehab

I feel like a computer!!

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Two days to go and the nervousness is giving way to excitement. Switch on is at 9.00 am

On wed the kids are going to my mums before school only problem with

Not driving the trains are so early zzzzzz

Hopefully on wed night I should be able to hear little things round the house

And on Thursday back again for programming and rehab

I feel like a computer!!

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Just keep your expectation low as there's so many adjustment to be made over the few weeks, I'm up on Thursday in the Coton House! Good luck!

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Thanks I have got a few appointments there a well though in November I have a whole month off lol

My hopes are high expect ions well if I hear a beep I will be happy

I plan to spend the week finding out what I can hear and what I can t so audio know

What I need ,if this weather keeps up bet ill be able to hear raindrops!

Post soon

Karen

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All set for tomorrow I will post back as soon as I can

Fingers crossed all goes well. Beeps and tones here I come

Non tinitus related ones plz :)

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