Jump to content

Auditory neuropathy


Sarwar kashem
 Share

Recommended Posts

Hello, We are parents of child with auditory neuropathy. We are done with one rondo 2 implant. Our child is 2 years old. I'm asking how much time it requires to speak as auditory verbal therapy is ongoing.

Link to comment
Share on other sites

  • HearPeers Heroes

@Sarwar kashem

Welcome to HearPeers.  When was your child activated with Rondo 2?

 

I wish there was a magic ball that could answer your question. Unfortunately it varies.

It is terrific that you are set up with auditory verbal therapy!  How is that going?

  • Like 1
Link to comment
Share on other sites

Thanks for your reply. It's been 2 weeks since we have started therapy. I was wondering if there is any parents with auditory neuropathy child. The diagnosis is rare so we are worried.

Link to comment
Share on other sites

  • HearPeers Heroes

@Sarwar kashem

There is another parent of a child with ANSD here.  Follow this link to connect.

 

Link to comment
Share on other sites

  • 3 months later...
On 7/25/2021 at 9:19 PM, Sarwar kashem said:

Hello, We are parents of child with auditory neuropathy. We are done with one rondo 2 implant. Our child is 2 years old. I'm asking how much time it requires to speak as auditory verbal therapy is ongoing.

Hello Sarwar, our son has ASDN and now is 9 yo. He has a bilateral deficiency of cochlear nerve and got CI when he was 2,5 yo. It took us full 3 years of intensive listening and speech therapy (5 days a week) to see steady progress. We were taking him for these daily practices for 5 years and stopped when he enrolled school. 

Since initial prognoses were quite grim and ranged from, "he might be able just to hear some sounds but not develop speech understanding and producing" to "he might be able to develop high speech understanding and producing" - we are more than happy with the current outcome. Our son goes to the third grade of common school. He understands speech well (with certain limitations which I can tell you more about if you are interested in our experience) and also can speak understandably (with an accent like he is from a foreign country :)). He likes to read a lot and has a rich vocabulary (reading is immensely important for kids with hearing loss, at least from my point of view).

The point is, yes its quite rare condition and due to that fact could be even more challenging than in cases of other kids with hearing loss. Therefore, it's important to stay highly informed (what you are obviously already doing by participating in this forum), be realistic in expectations, but also be persistent and never stop believing in them and supporting them. Also, ANSD is so wide spectrum and each kid is specific so its healthy to avoid comparison to others and stick to your own road. 

I hope this helps a bit -it's challenging to write a short post on such a vast topic where each and every experience is different. If you think I could provide you with more info that might be useful do let me know, I will do that gladly. 

Wish you and your family all the best! 

 

Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
 Share

×
×
  • Create New...