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Chemotherapy and Cochlear Implants


Mary Beth
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CIs and Chemotherapy

 

Recently I learned that I have cancer and will most likely need chemotherapy.  That led me to a search online about ototoxic chemotherapy drugs in established cochlear implant users.  I reached out and requested information so that the oncology team has this information when considering chemotherapy treatment.  I realize that the most effective chemotherapy regimen may in fact include some of these ototoxic drugs.  However if there are equally effective alternatives, it is important to me that they are considered.

 

I have bilateral Med-El CIs and Med-El has a medical procedure document online which gives guidance for surgical instruments which use electrical currents, radiation, MRI guidelines based on internal implant type, etc.  It is very helpful and can be found here:

https://www.medel.com/en-us/important-safety-information

 

There are 3 documents that I have read so far that discuss ototoxic drugs.  One case study is specifically about the chemotherapy drug cisplatin and an established CI user’s loss of CI hearing abilities.  I am not a medical professional and we all know that each individual’s experience varies.  I am sharing these links in case anyone else finds them helpful.  I am hoping you never have a need for them.

 

Thank you to everyone who helped me gather this information.

 

I wish you all the best.

 

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3144856/

 

https://www.ultimatekiosk.com/files/OtotoxicBrochurebyLeagueforHardofHearing2012Jul12.pdf

 

https://pubmed.ncbi.nlm.nih.gov/23044998/

 

Edited to add this report.  A CI user reported to me substantial decrease in hearing with her CIs after treatment with Taxotere for cancer.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7678920/

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@Mary Beth. What miserable news. I really feel for you. I hope treatment goes well, that the cancer has been caught in an early stage, remission follows and life gets back on a more even keel. Good luck!!

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@Mary Beth I'm sorry to hear this.  I hope the treatment is easy on you, works quickly and you're back to normal soon.

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Ditto Andrew42.  Thank you, Mary Beth, for highlighting this issue.  My brother in law is just now buying hearing aids due to hearing loss from chemo.  It is the first I've heard about it.  

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@Mary Beth So sorry to hear about your diagnosis. I echo others when I say hope this was caught early and you get into remission quickly. You will definitely be in my thoughts and prayers. 

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Thank you @Jason77

 

@Rubella I am sorry to hear about your brother-in-law’s hearing loss following chemo.  I wish him the very best.

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@Mary Beththis is terrible news, I'm so sorry 😔. When I read this I felt such a pang of sadness. I realise I think of you as something like a 'how to be deaf but totally amazing' mentor! Your support means so much to me, and I'm sure to many many others. Even though we've never met in person I think I and many of us feel that we know you through the posts and video chats, and therefore care deeply about your well-being. So you look after yourself and get better!! Will be cheering you on.

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Thank you my friend @Kylie

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Hi Mary Beth, I'm so sorry to read this news. I hope chemo goes well and you have a swift and full recovery. Thank you for sharing your excellent research. Best wishes.

 

 

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Thanks @RRG

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@Mary Beth I have not been very active on the forum for the past few months due to things that are going on in my life now. For some reason I decided to log on tonight and see what has been going on here. Your post was the first thing I saw and I am so sorry to hear this. You have been an inspiration to so many people with your CI knowledge and valuable information. I have never met you but feel that I know you well and believe that you will be very successful in your upcoming fight with this. Hang in there and you will be back to normal in no time.

Tommy C

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@Tommy C

Thank you so much for your kind words and encouragement.  I will be thinking of you as well and wishing you the very best.

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