HearPeers Heroes Kara of Canada Posted February 26, 2018 HearPeers Heroes Report Share Posted February 26, 2018 So the date is set!! March 29! For second surgery. Mary Beth, Jdashiell and Cara Mia 3 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted February 26, 2018 HearPeers Heroes Report Share Posted February 26, 2018 Yay! Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Jdashiell Posted February 26, 2018 HearPeers Heroes Report Share Posted February 26, 2018 1 hour ago, Kara of Canada said: So the date is set!! March 29! For second surgery. Great News!! Congrats!! Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Kara of Canada Posted March 1, 2018 HearPeers Heroes Report Share Posted March 1, 2018 Thanks guys! Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Kara of Canada Posted March 15, 2018 HearPeers Heroes Report Share Posted March 15, 2018 For those following my journey I had my pre-op. All set for surgery on the 29 of this month. Two weeks I’ll be bilateral!! Jewel, Cara Mia and Mary Beth 3 Quote Link to comment Share on other sites More sharing options...
Carolmarie Posted March 19, 2018 Report Share Posted March 19, 2018 Congrats Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Kara of Canada Posted March 19, 2018 HearPeers Heroes Report Share Posted March 19, 2018 Thanks @Carolmarie!! I’m excited and nervous a little bit. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Kara of Canada Posted April 11, 2018 HearPeers Heroes Report Share Posted April 11, 2018 UPDATE So surgery was a success. No complications. I was in nd out of the hospital in 8 hours. Recovery was very good. Only strong pain meds the first night then regular Tylenol for a week as needed. Staples out today no issues. I did however start having some nerve pain a couple of days ago. It comes and goes exspecially in the middle of the night. Drsaid he didn’t know what to say about it. I had it last time so I will just tough it out. Activation May 3! Can’t wait!! Jewel and Mary Featherston 2 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Jewel Posted April 12, 2018 HearPeers Heroes Report Share Posted April 12, 2018 Hope the nerve pain dissipates soon @Kara of Canada Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Kara of Canada Posted April 13, 2018 HearPeers Heroes Report Share Posted April 13, 2018 Actually @Jewel I think I figured it out! My husband has the fan on high at night and I think it was hurting my ear with the breeze. The last two nights I have covered my ear. Seems to help. Also when I go out if it’s cold and windy I cover my ear. Still have a bit of achy ness but definitely not as bad. Strange but weird! That’s my life!! Jewel 1 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Kara of Canada Posted June 10, 2018 HearPeers Heroes Report Share Posted June 10, 2018 Wow been a wile since an update. So hearing is coming along well with two implants now. I just had my one month mapping and it was amazing. My first ear the right one is preforming the same. Which I wasn’t sure. Since the second one was turned one it was feeling as thought it was hindering the first. But it wasn’t. As for the second it is catching up rapidly. It’s at 48% already! With the two together in a quiet setting it’s at 90% in a noise setting they’re at 74%. So I couldn’t be happier. Even though speech isn’t sounding normal it is there! So I have to keep up my good work as my Audi said and don’t change anything! So onward with audiobooks it is! How are things @Mary Featherston? @Renachelw And @stranger? Or @Dave in Pittsburgh been a awhile. Renachelw, Daniel the Stranger and Jewel 3 Quote Link to comment Share on other sites More sharing options...
Renachelw Posted June 11, 2018 Report Share Posted June 11, 2018 Hi @Kara of Canada that's good to hear! It's been almost, (1 day more) to a week since switch on. I'm hearing relatively well, speech is sounding more normal now, and sometimes I can even hear through rooms without lipreading! It's magical. The quality of sound right now i'm hearing is about the same as the time when my hearing was Profound range and HAs did not help, and had to use the FM system. It sounds "echo-y" like the FM system. Not sure if that's supposed to be like that or what lol. I also tried singing last night. I listened to Sam Smith's too good at goodbyes for the 1st time (and many times after that), followed by attempting. My sis says I improved a lot, but maybe I need better speakers coz i'm still quite terrible lol. I can finally hear what song is like. All long I've been hearing and singing as if i'm reading, I can finally hear the -Idk the word- vibrato?? I'm still having some problems with Pitch and differentiating Male and Female voice in songs though. Honestly I do not know why I can understand speech so fast (as I've read that most people don't get it till more mappings), so i'm actually really scared that this is the best quality i'll ever get and i'm potentially stuck with it? I do not know. Will be going for my 1st mapping later in the afternoon, followed by speech therapy. I'm wondering what it will be like during and after? Edit: I also listened on YouTube to tunes of some songs I used to play on the violin, they're recognizable but not fantastic. Definitely better than during my terrible hearing with HAs. I might go back to playing the violin again someday. Now i'm actually scared to try coz I don't want to be disappointed. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted June 11, 2018 HearPeers Heroes Report Share Posted June 11, 2018 It’s early weeks still @Renachelw. A lot will still change. Great start! Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Kara of Canada Posted June 11, 2018 HearPeers Heroes Report Share Posted June 11, 2018 @Renachelw I was going to say that too. My new ear still sounds off. Sounds like people have cotton in their mouth. Which I am starting to notice is going away slowly. So yes it takes time. The more you practice the better things will sound. Music I’d don’t push till month two or three. It took a long time the first round for it to sound good. But I had to listen and re-listen to get it sounding good. So chin up you are well on your way. Renachelw 1 Quote Link to comment Share on other sites More sharing options...
Renachelw Posted June 11, 2018 Report Share Posted June 11, 2018 @Kara of Canada Thanks I just got back from the audiologist and speech therapy. I was actually given a remote with volumes from 6-10. I felt fine with staying at 6 so I didn’t increase, but today after some tests, my audiologists told me I needed to increase the volume as I was not hearing all the sounds. Mapping has been shifted to end July. Also I can’t rly differentiate male and female voices in songs, as well as when I whistled I only hear the air sound but not the whistle sound. Did more beeping test, and we found that 2000Hz to be a low sound for me. Audiologists says it might be because one of the electrodes are not suitable or smth along those lines, but since it’s still early days, we’ll give it a month before returning back for mapping. So for now, no changes. My speech therapist and audiologist says that so far I’m progressing well, so we do not need to meet until end July. Meanwhile, I have to try to train my brain, especially for those words I can’t hear during rehab. I also have to switch of my hearing aid and use only the implant from now on, to train my brain faster, they said. Thats all for today Daniel the Stranger 1 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Kara of Canada Posted November 2, 2018 HearPeers Heroes Report Share Posted November 2, 2018 So here’s a new one. I was testing for loudness in the electrodes. I noticed that the pitch changed as she increased the volume. She said that it’s because sometimes the electrode array is close to the canal and stimulates more than one hair cell! Was strange for me. But overall still progressing. Ear one was a bit behind so we remapped that too. Told to train my ears with background noise now. That will be tricky! But new!! So forward we go!! Jewel and Mary Featherston 2 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted November 2, 2018 HearPeers Heroes Report Share Posted November 2, 2018 Great update @Kara of Canada. I had to train each ear separately and both ears together so I did all training activities those 3 ways for quite awhile. How are you planning on training in noise? Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Kara of Canada Posted November 2, 2018 HearPeers Heroes Report Share Posted November 2, 2018 I was told to use the neckloop for direct streaming, and have the tv or radio going in the background for the other ear. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted November 2, 2018 HearPeers Heroes Report Share Posted November 2, 2018 @Kara of Canada Definitely. That trains each ear separately for speech in noise. Just take turns with which ear is on T and which is on M. We can also set both to MT and train both for speech in noise. This is more difficult as we can not just tune out one side. Have fun and good luck! Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Kara of Canada Posted November 2, 2018 HearPeers Heroes Report Share Posted November 2, 2018 Thanks @Mary Beth she did say to alternate as well. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted November 2, 2018 HearPeers Heroes Report Share Posted November 2, 2018 @Kara of Canada Our audiologists know best. Where would we be without them?! Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Kara of Canada Posted November 2, 2018 HearPeers Heroes Report Share Posted November 2, 2018 Funny you say that! That’s the truth! Mine has claimed to have met you!! Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted November 2, 2018 HearPeers Heroes Report Share Posted November 2, 2018 @Kara of Canada Your audiologist has met me? Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Kara of Canada Posted November 2, 2018 HearPeers Heroes Report Share Posted November 2, 2018 That’s what she said. I told her you were a teacher of the deaf. And she described you. At a conference or something. Quote Link to comment Share on other sites More sharing options...
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