Enegra Posted May 8, 2022 Report Share Posted May 8, 2022 I've browsed this forum on and off without registering, but I figured that I might as well introduce myself! I've had profound hearing loss since birth and did the leap of faith onto the CI train a couple of years ago. I have bilateral Synchrony implants - first side September 2020, second August 2020 with Sonnet 2 processors. Unfortunately I've had some complications along the way, some quite severe, so the ride has been rather rocky for me. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted May 8, 2022 HearPeers Heroes Report Share Posted May 8, 2022 @Enegra welcome to HearPeers. I am sorry to read that your CI journey has been rocky. We are a friendly group. Feel free to ask questions and share your journey if you wish. Quote Link to comment Share on other sites More sharing options...
Enegra Posted May 9, 2022 Author Report Share Posted May 9, 2022 Thanks for the welcome, Mary Beth! It was not so much of a journey rather than trying not to crash the raft on the rock. Long story short, for over a year I had rather disappointing results, the clarity was better than with HAs, but still not quite giving me high speech comprehension. Turns out it was a mapping problem, which was not helped by the impedances randomly changing twice, resulting in the map being almost turned upside down. The second time it happened though was a blessing in disguise, because I had the head doctor come and look at my map (I figured that at this points others had given up trying to fix it). From that point it was a 180 turn, I can actually talk with masked people and general conversations are not much of an issue anymore. The second surgery damaged my facial nerve and it still hasn't recovered yet. I had a revision surgery to address this, because the nerve was originally getting pinched by the implant, it alleviated most of the pain, but a lot damage has been done, mostly due to the pandemic nearly shutting down the hospital. I had to wait two months for that revision on very heavy medication. Now I am still stuck on medication to mostly suppress debilitating migraines - the kinds that come with bad vertigo, throwing up and phantom sounds (different than tinnitus), but at least it affects me a bit less. Still, my Master's studies are currently on halt because of this, and it's not easy to cope with all of this. Hopefully I can engage in some MEd-El specific talks in here. I am a member of a Discord community for CI recipients, but I am drowning in a sea of yellow brand users there, haha! So it's nice to meet more from the "team red". A while ago I saw a thread about using AudioStream with a computer, it made me find out another workaround with Steam Link (and it's free!), so it's been productive already! Quote Link to comment Share on other sites More sharing options...
Dave in Pittsburgh Posted May 9, 2022 Report Share Posted May 9, 2022 @Enegra I’m so sorry to hear about your situation we on HP are a great group of support we have monthly chats I’m bilateral I had my first implant 2016 and second in2018 I have the sonnet processors Again welcome Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted May 9, 2022 HearPeers Heroes Report Share Posted May 9, 2022 @Enegra You have had a difficult experience! I am sorry about that. Tell us about your stream link work around with AudioStream and the computer. That sounds interesting! Quote Link to comment Share on other sites More sharing options...
Dianna Posted May 25, 2022 Report Share Posted May 25, 2022 I would also be interested in that link 💘 Quote Link to comment Share on other sites More sharing options...
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