Interesting article on rehab plus resources that might be helpful

[Adam]

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Cochlear: Hybrid

Articles Cochlear Implants Aural Rehabilitation/Counseling - Adults Learning to Hear Again: Cochlear Implant Audiologic Rehabilitation Guide for Adults

Learning to Hear Again: Cochlear Implant Audiologic Rehabilitation Guide for Adults

Donna S. Wayner, PhD, Judy E. Abrahamson, MA

February 18, 2002

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Introduction:

The progress made over the last decade in cochlear implants, surgical techniques, and speech processing strategies has been phenomenal. There has been vast improvement in functional outcomes when comparing early single channel devices, which provided basic speech awareness and improved speechreading ability, to current digitally-based technology, where open-set speech recognition no longer amazes the clinician. With improved technology and outcomes, some assume the adult cochlear implant user no longer requires audiologic rehabilitation.

Is it appropriate to omit audiologic rehabilitation because the patient is "doing pretty good" without training? Is "good enough" adequate, when additional rehabilitative procedures could insure that the patient is performing at his or her optimal level?

We believe effective treatment must consider the effect of the hearing impairment upon the individual and the people with whom he/she interacts. The following assumptions are the basis of our audiologic rehabilitation program:

"Pretty good" is not good enough

A rehabilitation program will contribute to cochlear implant users reaching their full potential. The nature and content of rehabilitation programs will vary with each individual, but even those with excellent performance following initial stimulation may benefit from a rehabilitation program designed for their needs.

Hearing loss usually cannot be (re)habilitated by cochlear implants alone

In many cases, additional counseling, education, training in perceptual skills, and training in the dynamics of communication facilitate the individual's independent management of their hearing impairment to improve communication skills.

Information and support is important to the patient

Implantation results in dramatic changes in communication function, interpersonal communication and relationships, and environmental awareness. Information, guidance and support facilitate the individual's transition from being "deaf" to being "hard of hearing."

Family involvement in the rehabilitation process is desirable and important for optimal benefit from the cochlear implant

The sudden change in hearing ability, which results from implantation affects the patient, his/her family, friends, and co-workers. The rehabilitation process is quickened and the opportunities for success are improved if these individuals are involved. Information enhances the patient's and the communication partners' understanding of the benefits and limits of implantation and the recognized factors in listening environments that can have predictable effects on performance.

Recommended Activities:

A variety of materials and activities will assist the clinician in providing customized rehabilitative programs for the implant user and their family members. Some activities are designed to be used with groups of cochlear implant users, others are to be used with mixed groups of cochlear implant and hearing aid users. Family members are encouraged to participate.

Sample material related to Telephone Use, Communication Strategies, Speechreading and Auditory Training are noted below.

I. Telephone Issues:

Phone use is a special challenge for anyone with hearing loss, and this is particularly true of cochlear implant users. Some patients may begin using the phone for the first time, while others may be re-introduced to telephones after not using them for a long time. Practice can make using the phone easier for most implant users.

A. Notes for the Patient:

Talk face-to-face with friends, co-workers, and family members about using the phone. Teach them the best way to speak to you. If they understand what the cochlear implant can and can't do, they will more likely remember to speak the way you need them to. Ask them to help you with practice exercises in the guide. This may help them understand your new hearing status. Strangers who call are usually more challenging. If you have difficulty understanding strangers, tell them you have hearing loss. Tell them what you need (slower speech, etc).

B. Telephone Hints for the Patient:

Develop the skill of making specific suggestions to callers. Rather than simply saying "Sorry, I didn't hear that." If you find yourself in a bind, try some of these examples:

"I can't listen as fast as you can talk. Will you slow down for me?"

"I think I could understand you better if you would talk a little softer."

"Did you just say that (for example) the meeting is next Sunday at 7:00?"

"I'm not good at recognizing voices. Who is calling, please?"

"Please let me turn off the TV. I think I'll hear you better without that noise."

"That is perfect volume (or speed) for me to understand. Thank you."

"Let me repeat that back to you to make sure I heard you right."

C. Telephone Hardware Hints:

Start with the cochlear implant telephone adapter for your cochlear implant speech processor. Follow the manufacturer's instructions and practice using the adapter. Install it on the phone you use most often. Take it with you when you travel.

Regular phone use - Follow the manufacturer's instructions.

Amplified Phones - Telephones with built in amplifiers may be of help. Some amplify all pitches, others have tone controls, which allow some adjustment. Check with your audiologist for more information.

Speaker Phones - For many cochlear implant patients, speaker phones provide the best signal.

Pay Phones - When using pay phones, choose one in a quiet location, if possible. Look for a pay phone with an amplified handset. When traveling, carry your phone adapter (use one with a suction cup since the direct connect phone adapters will not work away from home or office).

D. Things to think about when preparing to master telephone use:

Some cochlear implant users notice that they can't recognize a person's voice over the phone; everyone sounds the same. If this is so, tell the people you speak with regularly that you need them to begin each phone call by stating their name.

Voices that are too loud or too soft may be difficult for the cochlear implant to process. Teach the people who call regularly how loud you need them to speak over the phone. Let them know when their voice is just right.

Speaking slowly and clearly is helpful over the phone, but many people, talk very fast. Ask people to slow down and let them know when their rate is just right for you.

E. Background Noise:

Keep in mind that background noise will interfere with understanding. The speech processor will choose the loudest signal to send to your ear. You may need to turn down noise near the phone, or ask the caller to do the same before you can understand.

F. Double-check details:

It is important to confirm your understanding of important details over the phone. Dates, times, names, addresses, etc., require accurate understanding. Get into the habit of double-checking details of conversations so you and person you are speaking with will know these details have been successfully communicated.

II. Communication Strategies

Communication will be a challenge during the first days and months following initial stimulation for the implant user and the people they interact with. Sound will be different and it will take time for the implant user to adjust.

A. Ways in which family members can assist:

Speak in normal tone of voice.

Face the person you are speaking to.

Help identify sounds that are new and perhaps confusing.

Assist with "homework" assignments.

Get the listener's attention before you speak. If you wait until he/she is ready to listen before you begin talking, you may not have to repeat yourself.

;Do not shout: Talking louder usually makes matters worse because it creates distortion.

Slow down: Talking a little slower than usual often makes your voice easier to understand.

Get close: It is best to move close to the listener before talking. It saves you from shouting and makes you easier to understand.

Speak clearly: Don't exaggerate your pronunciation. Try to finish speaking all the sounds of one word before you begin the next.

Rephrase: If repeating one time does not help, it is better to use different words to express the same idea.

State the topic: Tell the listener what topic you are about to discuss. Tell him/her when the topic changes.

Use gestures: These can help with understanding.

Confirm details: Politely double-check that key details of a message have been understood accurately.

Notice background noise Turn the noise down or move to a quieter place, if possible. Be careful talking in a noisy place since it interferes with understanding.

B. Tips for the cochlear implant and hearing aid patient to improve communication. There are many things individuals can do to take advantage of their state-of-the-art cochlear implants or hearing aids. Certain techniques go a long way in reducing communication and interpersonal challenges.

Pay attention: Concentration is very important.

Develop good listening skills: Concentrate on what is said.

Observe the talker: What you see supplements what you hear.

Plan ahead: Think about possible challenges to good understanding. Plan what to do if they occur.

Take breaks if needed: Listening with hearing loss can be tiring. You can concentrate better if you are fresh.

Make specific suggestions about how to talk to you: For example, it is better to ask a person to rephrase or slow down rather than just say "What?"

Provide feedback: If you tell your partner what you heard, both of you will know right away if you understood correctly.

Double check details: Repeating what you understood someone to say can prevent confusion later on, especially regarding dates and times.

Do not bluff! Pretending you understand when you don't is a "no-win" situation.

Set realistic expectations: Some situations are just too noisy to understand clearly.

III. Speechreading:

Everyone "speechreads" or "lipreads" a little. Most people with normal hearing don't think about speechreading, and they naturally do it to enhance communication. For hearing impaired and deaf people, speechreading is a valuable asset that adds terrific insight into the communication event. Practicing speechreading helps you take full advantage of visual clues.

If the person speaking to another who is hearing impaired selects workds with the more visible sounds, understanding will be improved.

A. Sounds to Look For When Speechreading

The chart below outlines the visibility of different consonant sounds.

Most Visible Sounds

IV. Auditory Training

Raymond Carhart described auditory training as the "process of teaching the child or adult who is hard of hearing to take full advantage of sound cues which are still available to him/her" (Chermack, p 146). Combining auditory and visual cues will usually optimize communication. Auditory training will assist the person with hearing loss to use his residual hearing to the fullest.

Sound may be heard, but it must have meaningful association to be understood. It must be related to people, objects, events, and ideas. Auditory training should involve the use of meaningful dialogue representative of the messages an individual will encounter in their academic, work, home, and social environment. Programs must emphasize practice in daily situations in which the participants' auditory comprehension is challenged. Such training should include listening, decision making, and responding to representative speech messages.

A. Levels of auditory training include:

Awareness of sound (presence/absence)

Identification of sound (labeling)

Discrimination of speech sounds (recognizing syllabic content)

Comprehension of speech discourse (understanding)

B. Lessons should include:

Explanation and training of auditory memory. (eg. remembering names, association practice, attentiveness)

Practice activities related to rhythm, inflection, intonation, and accent.

Exercises in using contextual cues.

Training in vowel recognition since they are the strongest voiced elements of speech.

CONCLUSION:

You have now reviewed a few samples of the many practical materials included in our book for cochlear implant users. We hope these help you guide your patients to get the most out of their implant technology.

With work, time, practice and patience, every cochlear implant patient can gain improved communication function. Even those who have worn their speech processors for long periods can realize improvement in communication effectiveness by following some of the guidelines noted above. Learning to take full advantage of the potential of the device is a continuing process. Encourage your patients to recognize this. Suggest that your patients and their significant others work together to become better communicators.

Good luck in this exciting adventure of facilitating improved communication for your patients who use cochlear implants, their families and friends. It is a privilege to act as a facilitator in this endeavor. We welcome your comments and suggestions via e-mail to: hearagain@jump.net.

Recommended groups and associations:

Cochlear Implant Club International (CICI)

5335 Wisconsin Avenue., Suite 440

Washington, DC 20015-2034

(202) 895-2781

Self Help for Hard of Hearing People, Inc. (SHHH)

7901 Woodmont Avenue, Suite 1200

Bethesda, MD 20914

(301) 657-2248 (Voice)

(301) 657-2249 (TTY)

Association of Late Deafened Adults (ALDA)

2600 W. Peterson Avenue., Suite 202

Chicago, IL 60659

Recommended readings:

Biderman, B. (1998). Wired for Sound, Trifolium Books, Inc., Toronto, Ontario, Canada

Chermack, G.D. (1981). Handbook of Audiological Rehabilitation, Springfield, IL: Charles C. Thomas.

Dugan, Marcia (1997). Keys to living with hearing loss, Bethesda, MD: SHHH Publications.

Erber, Norman, (1993). Communication and adult hearing loss, Abbotsford, Victoria, Australia: Clavis Publishing

Pope, Ann (1997). Hear: Solutions, skills and sources for people with hearing loss, Bethesda, MD: SHHH Publications

Romoff, A. (2000). Hear Again: Back to Life with a Cochlear Implant, League for Hard of Hearing Publication, New York, NY

Wayner, Donna S, (1998). Hear what you've been missing: How to cope with hearing loss, New York, NY: John Wiley Publishing

Wayner, D.S. and Abrahamson, J.E., (1998). Learning to Hear Again with a Cochlear Implant; Clinician Manual; A Personal Journal; User's Guide, Latham, NY: Hear Again, Inc.

Recommended publication sources:

A.G. Bell Association for the Deaf

3417 Volta Place, NW

Washington, DC 20007-2778

(202) 337-5220 (Voice/TTY)

SHHH Publications

7910 Woodmont

Bethesda, MD 20814

(301) 657-2248 (Voice)

(301) 657-2249 (TTY)

Hear Again, Inc.

37 Grandview Drive

Latham, New York 12110

(518) 786-3573

Life After Deafness

6773 Starboard Way

Sacramento, CA 95831-2413

(916) 392-5750 (Fax)

NIDCD Information Clearinghouse

National Institute on Deafness & Other Communication Disorders

National Institute of Health

1 Communication Avenue

Bethesda, MD 20892-3456

(800) 241-1044 (Voice)

(800) 241-1055 (TTY)

Recommended Audio Books

Books on Tape, Inc.

(offers unabridged books on tape for rent)

(800) 252-6996

Educational Records Center

(offers a six cassette tape set, The Definitive Encyclopedia of Sound Effects, for sale)

(800) 438-1637

Micro Sound Product (offers a four CD set, Sound Effects, for sale)

(707) 347-7662

Recommended Internet Sites:

www.bionicear.com

www.healthyhearing.com

www.hearagainpublishing.com

[Mary Beth]

Good share Adam but I am still laughing at the mention of pay phones. I guess that dates the article a bit. Times sure have changed.

[Adam]

Yes I believe it was written around 2002. I figured there was still some info we could learn from.

[Kara of Canada]

Well it's is true. The old stuff is tried and true!!

[Sandy]

Wow this is good Adam. It would be useful as a handout to new implantees to share with family and friends.

[Cara Mia]

Thank you, Adam.  Good organized info to move in the right direction. I even printed out some of the paragraphs. Definitely will use it in my future rehab.

Especially I was glad to get the chart that outlines the visibility of different consonant sounds. I am going to build my rehab on sound around this. Thanks one more time.

[Adam]

Awesome Cara! Sounds like you will be going into this very well prepared. It will still be work, but your planning in advance will help make things seem not so overwhelming. Good job

[Cara Mia]

No worries. I can be pretty lenient (at least reasonable). And then in you other post you promised me that I will be surprised how much I can achieve by pushing myself when prepare properly. So, I am getting prepared to reasonably push myself to complete success

[Mary Beth]

Cara,

I am proof that auditory therapy works. I listened to my body and my body was happy to train everyday for 2-3 hours. I also had set up the apps etc so I was ready to jump right in on activation day.

You will do just fine.

[Adam]

This is a sports quote but I think it fits here

"There is no glory in practice, but without practice there is no glory."

[Mary Beth]

Agreed.

Dreams do not work unless you do.

[Adam]

So true