Hila Posted March 21, 2016 Report Share Posted March 21, 2016 How did everyone deal with life during the time after surgery and before activation? I have a feeling it's going to be long four weeks. I'll be without hearing aid on the implanted side and I feel it's going to be very difficult. Can anyone share thoughts or experiences? Thanks DarlaHS 1 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted March 21, 2016 HearPeers Heroes Report Share Posted March 21, 2016 Time after surgery and before activation for my first CI, sounded no different to me because my right ear had not been processing any sound for 24 years. I was eager to get activated and very curious about what everything would sound like so I busied myself getting ready for auditory training. Time after surgery and before activation for my second CI did sound different in a way as I no longer heard anything when my CI was removed. But I had been functioning with one CI for several months by then since my HA was of little help so speech sounded the same to me. Rest up. Once you are activated, you will be very busy! Hila 1 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Kara of Canada Posted March 22, 2016 HearPeers Heroes Report Share Posted March 22, 2016 I would say that it was a bit difficult for me. It was four weeks before my activation. I couldn't hear well. My surgery had some unexpected complications so I was actually on bed rest for the first two weeks. So I didn't do much or go very far without someone. I really relied on lip reading and avoided strangers. But afterwords was so awesome that I can't really explain it fully!! So rest up and be patient for the ear to heal. Best if luck!! Hila 1 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Sandy Posted March 22, 2016 HearPeers Heroes Report Share Posted March 22, 2016 I never found much difference before activation as I heard very little before surgery. As the others have said, rest up because once you are activated, you will be busy. Keep us posted. Hila 1 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Ivana Marinac Posted March 22, 2016 HearPeers Heroes Report Share Posted March 22, 2016 Well, although I could hear with my HA as well as before the op (it is a BB not a CI) - I can not deny that inspite of my excitement I have worried pretty much. Implantation was a modification and we did not know how well it will be, even activation was a special event. Few days had to pass so I could see a real benefit of the operation - the period of first few days when plasticity started to act although nobody prepared me to that. But, with help from the forum was enormous. Hila 1 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Cara Mia Posted March 22, 2016 HearPeers Heroes Report Share Posted March 22, 2016 The period between my surgery and activation had changed nothing for me as my implanted ear had heard nothing for 10 years. I don't know about your work situation, but it was important for me to let my coworkers know that I'm not going to hear right after the surgery and even during some period of time after the activation. Actually, nobody got it at the beginning, but it was much easier for me to explain it everybody again when I got back after surgery. And you know, if you fell uncomfortable in some situation - just smile wider and people will be happy to accommodate all needed for you Hila 1 Quote Link to comment Share on other sites More sharing options...
Hila Posted March 24, 2016 Author Report Share Posted March 24, 2016 Hi friends, thanks for sharing your experiences. At first I just wanted to go through this like nothing happened, but now I figured I need to ease up and give myself as much time as needed. Hope it will all work out. Cara, it's funny because I've read all your entries and laughed when my co-worker asked me the other day if I'd hear better by next Tuesday... I remember reading your entry about that. I let everyone know that, in fact, it would be a lot worse before it gets better, and maybe it won't get much better at all. I just really hope it will. I've been reading it would take couple of years for some things to click. I know it won't be a normal hearing so overall I don't have high expectations but I do dare to dream about a more socially involved life and less missing out on life. Thank you all for reading and thanks for the support. I definitely will keep you posted. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted March 24, 2016 HearPeers Heroes Report Share Posted March 24, 2016 Hi Nikki, I hope you have results that get you everything you are hoping for. It's good that you realize it will take work and time. It's been one year since my first implant and my life has changed in so many ways. I hope you have the same results. Hila 1 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Kara of Canada Posted March 24, 2016 HearPeers Heroes Report Share Posted March 24, 2016 Yes Nikki I wish you all the best!! Friday will fly by and you will be a CI-Borg like the rest of us!! Ask as many question as you feel comfortable. That's what we're here for!! Hila 1 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Sandy Posted March 24, 2016 HearPeers Heroes Report Share Posted March 24, 2016 All the best on Friday, Nikki. I believe you will be pleasantly surprised with the results. Just remember the 3Ps - Patience, Practice and Perseverance. This has helped me through the last two years. Also, the support from this forum is phenomenal. We are here to support each other, so feel free to "talk" out your joys and frustrations. Hila 1 Quote Link to comment Share on other sites More sharing options...
Hila Posted March 24, 2016 Author Report Share Posted March 24, 2016 Thanks girlfriends! / CI-Borgs Cara Mia, Megan L. and Jenni M 3 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Ivana Marinac Posted March 24, 2016 HearPeers Heroes Report Share Posted March 24, 2016 Just to add - if you do not allow yourself to dream, you can miss some pretty interesting stuff around you. Never loose hope that something can be better than it is. Rationalization is ok, but after some time - on this way you will allow yourself to surprise yourself each day. Hila, Megan L. and Cara Mia 3 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Kara of Canada Posted March 24, 2016 HearPeers Heroes Report Share Posted March 24, 2016 That's a cool past Ivana!! Hila and Ivana Marinac 2 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Sandy Posted March 24, 2016 HearPeers Heroes Report Share Posted March 24, 2016 Absolutely, Ivana. Just look what dreaming has done for each of us! And continues to do... Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Adam Posted March 28, 2016 HearPeers Heroes Report Share Posted March 28, 2016 Nikki The anticipation grew by the day. As far as life, it didn't really change a whole lot as I didn't have any usable hearing before the surgeries in either ear. I just ran through a million scenarios as to how the activation could go and wondered what it was going to be like. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Ivana Marinac Posted March 28, 2016 HearPeers Heroes Report Share Posted March 28, 2016 That's a cool past Ivana!! Absolutely, Ivana. Just look what dreaming has done for each of us! And continues to do... It is an animation of Bob Dylan*s song "Forever young..." Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Jdashiell Posted March 29, 2016 HearPeers Heroes Report Share Posted March 29, 2016 I am in the 4 weeks period after surgery and before activation. It's a real struggle to hear with one ear after being binaural with has. It was a struggle being hog before but this is harder. The light at the end of the tunnel is still distant with 3+ weeks to go, but I'm looking forward to becoming CI-Borg! Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Sandy Posted March 29, 2016 HearPeers Heroes Report Share Posted March 29, 2016 I'm sure you will be pleasantly surprised. Keep us informed and remember, we are here to support you so ask whatever you need to know. Quote Link to comment Share on other sites More sharing options...
Hila Posted March 29, 2016 Author Report Share Posted March 29, 2016 Jdashiell, I remember reading your message noting your surgery is a day before mine. Wonder how you're doing today. I www hoping to get through it like nothing happened, but it's not the case. I haven't been anywhere other than home but I had one visitor and so far I get along fine with one hearing aid. Not as bad as I feared. No expectations, but Sandy Coull, your comment is very encouraging! I hope to feel it was all worth it. Quote Link to comment Share on other sites More sharing options...
Elli Posted December 21, 2016 Report Share Posted December 21, 2016 Hello , my name is Ellie I had my CI last Wednsday but i dont feel get better Im dizzy yet And cannot walk alone please let me know if it's normal. Thanks Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted December 21, 2016 HearPeers Heroes Report Share Posted December 21, 2016 Hi Elli, I am sorry to read that you are so dizzy. Everyone's experience post surgery is different. Make sure you let your surgeon know. She/he may have some recommendations that will help you. I hope you are back to feeling like yourself soon. Welcome to the group. Mary Beth Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Kara of Canada Posted December 22, 2016 HearPeers Heroes Report Share Posted December 22, 2016 Hi and welcome! Sure hope you feel better soon. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Adam Posted January 16, 2017 HearPeers Heroes Report Share Posted January 16, 2017 Elli everybody reacts differently to surgery. I have heard of people having some dizziness after surgery but it did settle down. If you are still struggling with this, I would contact your doctor and let them know. Maybe they can give you some relief. So sorry you have to deal with that. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes hadron Posted January 20, 2017 HearPeers Heroes Report Share Posted January 20, 2017 Hi Elli, Dizziness is a common side effect. Long after surgery I still get dizzy days on occasion. So I usually carry a small package of Meclizine with me. It stops the dizziness and let's me rest. You can get it over the counter at a drugstore or Walmart/Target. If you start taking it let your surgeon know. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Valentin Posted January 21, 2017 HearPeers Heroes Report Share Posted January 21, 2017 Same that hadron, Dizziness was my "mate" after two-three weeks. After connection these reduce a huge. Here wait four-six weeks for all heal well. Quote Link to comment Share on other sites More sharing options...
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