el_padrino Posted May 18, 2016 Report Share Posted May 18, 2016 Greetings, I'm from Canada and just learned that our son has a total loss in both ears. We don't know yet if he is eligible for CIs. MRI is scheduled within a month and it seems that some cases such as absence of audition nerve or major issues on cochlea will prevent my son being eligible. This stresses me out. My question to you experts, are these cases very common? Thank you Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Kara of Canada Posted May 18, 2016 HearPeers Heroes Report Share Posted May 18, 2016 Welcome to Hearpeeers! Dont fret. The surgeons are fabulous. I don't have any experience with little kids but from what little knowledge I do have of my own journey is to have hope and never give up. They will look at the MRI to check the anatomy of the cochleas. With little children they do bilateral implants in Canada. So be patient. It's very stressful I'm sure but rest assured the surgeons will do what is best for your child. Keep us posted and ask as many questions as you feel comfortable. Quote Link to comment Share on other sites More sharing options...
el_padrino Posted May 18, 2016 Author Report Share Posted May 18, 2016 Thank you @Kara of Canada. Yes they do bilateral. However they split the surgery in two phases to reduce the risk. We are hopeful. I'll keep you posted. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Kara of Canada Posted May 18, 2016 HearPeers Heroes Report Share Posted May 18, 2016 I will be here!! Keep me posted. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted May 18, 2016 HearPeers Heroes Report Share Posted May 18, 2016 Best of luck. It's great that you are pursuing CIs. Many many deaf kids benefit from CIs. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Sandy Posted May 18, 2016 HearPeers Heroes Report Share Posted May 18, 2016 Welcome to Hearpeers and good luck. Try not to stress too much. Remember the doctors are doing the best for your son. What part of this great country, Canada, are you from? I live in Thunder Bay and travel to London to see my audiologist. Quote Link to comment Share on other sites More sharing options...
el_padrino Posted May 18, 2016 Author Report Share Posted May 18, 2016 Thank you Sandy. We live in Quebec City. It seems that we have one of the best public CI centers in the country. I hope that my son will be able to do this CI. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Ivana Marinac Posted May 20, 2016 HearPeers Heroes Report Share Posted May 20, 2016 Hello El_Padrino, As my colleagues already wished you - welcome to the HP. Pardon me for my late response, but I am on the road visiting Netherland so I look around - not my mobile phone.. Regarding your specific questions, current estimates of the prevalence of congenital SNHL are between 1 and 6 newborns per 1,000. 20-30% of patients with congenital hearing loss demonstrate some sort of radiographically anomalous inner ear. BUT only 3% are complete cochlear aplasias. Results of the implantation which were conducted proven that even lack od complete development of the cochlea does not mean that these children do not have solution. On the contrary, rehabilitation were very successful. But, if this scenario happens after all, there is still one more solution - ABI or Auditory Branstem Implant. You, in Canada have this type of the implant available. But - step by step... If you have any other questions - try us: I am pretty sure that we cover many topics. el_padrino, Sandy and Mary Beth 3 Quote Link to comment Share on other sites More sharing options...
el_padrino Posted May 24, 2016 Author Report Share Posted May 24, 2016 Greetings, Just came from an ABR test for our son and it seems that he has an anditory neuropathy. Anyone knows about this and if it impacts CIs? Thanks, Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Kara of Canada Posted May 24, 2016 HearPeers Heroes Report Share Posted May 24, 2016 Hi I googled it and read a nice article. http://www.asha.org/aud/articles/CochlearImplantsANSD/. They say it can be just as good as a child with sensoral neuro hearing loss. el_padrino and Ivana Marinac 2 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted May 24, 2016 HearPeers Heroes Report Share Posted May 24, 2016 There are several parents of children with ANSD (auditory neuropathy spectrum disorder) who have received Med-El CIs in the Facebook group MedEl Cochlear Implant Discussion Group Join it and ask your question there too. Then those parents can share their experiences with you. el_padrino 1 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Ivana Marinac Posted May 28, 2016 HearPeers Heroes Report Share Posted May 28, 2016 Greetings, Just came from an ABR test for our son and it seems that he has an anditory neuropathy. Anyone knows about this and if it impacts CIs? Thanks, http://emedicine.medscape.com/article/836769-overview This is an excellent medical encyclopaedia. el_padrino 1 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Ivana Marinac Posted May 28, 2016 HearPeers Heroes Report Share Posted May 28, 2016 Hi I googled it and read a nice article. http://www.asha.org/aud/articles/CochlearImplantsANSD/. They say it can be just as good as a child with sensoral neuro hearing loss. Great link! Quote Link to comment Share on other sites More sharing options...
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