mcnarym1 Posted July 27, 2016 Report Share Posted July 27, 2016 Just wanted to post a topic about tinnitus to ask some questions and also provide any answers to those who might have it as well. First for my tinnitus story. Anyone who either hasn't gotten the implant yet and is in the process of waiting for activation and has tinnitus; don't worry it gets better! I myself have had tinnitus in my right ear ever since I had cancer when I was a child and the radiation had effected my right ear, however my hearing was decreased from the radiation so much that I could barely hear the sounds (high pitched buzzing sound for me). But once I lost my hearing in the left hear, very suddenly and rapidly, I had the worlds worst tinnitus. When I went to the ENT they diagnosed me with severe tinnitus. It was so bad that I couldn't sleep, one night I was actually up for 23 hours straight and nothing would put me to sleep, I wound up in the ER because I was also on a very high dose of prednisone for the sensorineural hearing loss/autoimmune inner ear disease. Long story short I was finally evaluated for a CI and got the surgery on June 24th. When I woke up from the surgery I remember still having tinnitus but it wasn't nearly as bad. Since my activation last week, my tinnitus is SO much better. It's not 1000 different sounds, now its just one or two and it's much much quieter now that I can hear other things to drown it out. So for those of you that might be in the waiting process to get your CI activated, tinnitus can get better with the implant so hang in there! Don't go crazy like me. If anyone needs a laugh my embarrassing tinnitus moment was before I got the surgery and the tinnitus was so loud. One night I smelled something burning but I couldn't figure out what it was and my fiance wasn't home, I was freaking out and my new puppy was barking more than she usually does. I started crying because I was panicking and so I called 911 and told them I can't hear you very well but I have hearing loss and am partially deaf, I smell something burning but can't find it I checked every room can you send someone to check. Long story short this big group of fireman came and basically it turned out to be that there was a container lid that had melted in the dishwasher while drying. My tinnitus was that high pitched and loud that I couldn't tell if my smoke detectors were going off or not! Second is some questions I have for those of you that do have tinnitus. Like I said it's much better than it was but it still has it's moments. Yesterday when I went to the gym I took my CI off since I don't have the sports headband yet and didn't want it to get sweaty. My tinnitus went from being low bird chirps when it's on, to loud sounds that ranged from high pitches to birds and buzzes. Does anyone else have this problem when they take they're CI off? The minute I out it back on it quiets down again. Speaking of birds chirping, does anyone else have that form of tinnitus? To me it sounds like I'm in a forest/woods with the birds chirping from a distance. Last question, at night when I go to bed I take my CI out and by the morning when I get up, the tinnitus is very very quiet and I barely hear it again until I put the implant on. Does anyone know what could be the reason for this? Quote Link to comment Share on other sites More sharing options...
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