mcnarym1 Posted September 14, 2016 Report Share Posted September 14, 2016 Hi there! I was just wanting to ask, has anyone ended up having to do vestibular rehabilitation due to getting the CI? My balance has always been off as I was sick as a kid. I've always relied on my left side to balance me, I lean to the left because I think it's center/etc. I got my CI in the left ear though and it hasn't been too bad, but I do feel nauseous a lot when I lay back or it just comes on suddenly. I'm a little nervous to start rehab but I'm definitely ready for it! I haven't ridden a bike in about 10 years so I'm looking forward to working to be able to do that again. Just curious if anyone else has vestibular issues? As far as sound, ok so hopefully this is a common thing or else I'm going crazy. So every now and then I'll be laying there with my CI out and hearing aid out, and I get this very odd quick almost buzzing sound in my head. It's usually only when I'm tired but it's a very quick buzz, almost like something is "speeding" around my head. I don't even know if that makes sense but does anyone experience something like that? When it does it, I go from being tired or with my eyes shut to being completely alert/awake. Should I mention this to my audi? Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted September 14, 2016 HearPeers Heroes Report Share Posted September 14, 2016 I always think it's good practice to mention things that concern us to our CI team. I hope your vestibular rehab goes great. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Adam Posted September 14, 2016 HearPeers Heroes Report Share Posted September 14, 2016 Yes, any questions you have, be sure to ask your doctor and CI team as they know your medical history best. i had many vestibular problems for years before my CIs. After almost a year of vestibular rehab, things got better for a few months then started with the same issues. In 2009, I ended up having to have a labrynthectomy. They removed the vestibular system from my left ear. It took a few months but eventually my brain realized I was missing half my balance so it took over and compensated. i had my first CI in April of 2011 with no major issues. be sure to talk to your doctor if you are having any concerns Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Ivana Marinac Posted September 16, 2016 HearPeers Heroes Report Share Posted September 16, 2016 So, this started just after the implantation? It sounds like - the post-implant benign paroxysmal positional vertigo. Does this happens only when you lie on your back and throw back your head? This happens when a bone dust is introduced into the labyrinth after drilling of the cochleostoma, and dislodging of otoconia during surgery. It is treated similarly as post-traumatic BPPV - by otoconia repositioning with basic head manoeuvre. A literature recorded that this happens in, around, 10-20% of CI implantees. It will be ok. However, there are other causes of post-implant vertigo. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Adam Posted September 16, 2016 HearPeers Heroes Report Share Posted September 16, 2016 Funny you bring up BPPV Ivana. I had this a number of times before starting vestibular rehab. The usual Epley procedure and Branch Dardoff didn't work Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Ivana Marinac Posted September 17, 2016 HearPeers Heroes Report Share Posted September 17, 2016 Mmm... Adam, from what I can pick up from your lines - vestibular rehab exercises couldn't be a solution for you. Although it is still unclear to me whether you had a perilymphatic fistula, Meniere's disease or some sort of posttraumatic leakage of endolymph, none of these conditions couldn't be resolved with vestibular rehabilitation. This sounds like a classic case of BPPV - lets play on most easiest scenario... Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted September 17, 2016 HearPeers Heroes Report Share Posted September 17, 2016 Sure hope it is the easiest scenario and corrected quickly. Ivana Marinac 1 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Adam Posted September 18, 2016 HearPeers Heroes Report Share Posted September 18, 2016 Ivana my issues were before I got my CIs. They believe that the fistula was due to a car accident where I had hit my head. A few years later, I had the BPPV. after unsuccessful attempts to take care of it, they sent me to vestibular rehab. Actually when they put me from a sitting position to lying bak quickly, they said I had the worst Nystagmus they had seen. I guess I'm an over achiever i went through that for 6 months doing many habituation exercises. Things did improve but it didn't last long. That is when it was suggested that a Labrynthectomy might be the best course of action. I got my first CI 2 years after that Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Ivana Marinac Posted September 18, 2016 HearPeers Heroes Report Share Posted September 18, 2016 Adam, my presumption about the BPPV is regarding mcnarym's question. You two, do not have same source of pathologies... Your's is somewhat quite more complex...;) Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Adam Posted September 18, 2016 HearPeers Heroes Report Share Posted September 18, 2016 My apologies Ivana. yep, my medical history is a wee bit complicated Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Ivana Marinac Posted September 18, 2016 HearPeers Heroes Report Share Posted September 18, 2016 Apology? - For what? Quote Link to comment Share on other sites More sharing options...
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