KYGENIE Posted September 20, 2016 Report Share Posted September 20, 2016 I was completely deafened in the left ear at age 7 due to meningitis. I got along fine with my right ear until 30 plus years of Meniere's and then AIED wiped out most of the hearing in that ear when I was 42. I got along okay with a high powered hearing aid in the right ear until AIED reared its head again. The decision was made to implant the left ear, now deaf for 52 years, and try to preserve the right ear as long as possible. While there was some ossification, all in all that left cochlea looked pretty good. The electrode was able to be fully inserted without much difficulty. A neural response was received when the implant was tested during surgery. Today was the long awaited activation day. My expectations, I thought, were realistic.....there would be sound/noise that might not yet be recognizable speech. Instead, nothing.......no sound, just a feeling of vibrations. No noise....no sound. The audiologist was startled and then went into "reassure the patient mode". Every activation article I read is "Sound! Noise!". I am told this is not unusual and that things can get better...however I haven't read any "real user" blogs/stories about this. I feel very discouraged. Did anyone here have less than a magical activation day only to have the sound kick in a few days later? Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted September 20, 2016 HearPeers Heroes Report Share Posted September 20, 2016 (edited) I had mostly silence then quiet marimba when my left CI was activated for speech. I did hear the beeps prior to speech being turned on. Edited September 20, 2016 by Mary Beth Quote Link to comment Share on other sites More sharing options...
KYGENIE Posted September 20, 2016 Author Report Share Posted September 20, 2016 I did not hear beeps either. More like a sudden pressure. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted September 21, 2016 HearPeers Heroes Report Share Posted September 21, 2016 I'm sorry your journey is starting out so quietly. I actually have read a blog online written by a CI user who started out in a similar fashion. I don't recall exactly where I saw it though. I will search and post a link if I find it. Are you in the US? I am in the northeast corner of New York State. Mary Beth Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Adam Posted September 21, 2016 HearPeers Heroes Report Share Posted September 21, 2016 I'm sure that must be a little bit of a let down for you. Try to be patient, your brain hasn't heard that stimuli in many years. It will take time but things will start moving forward hopefully soon. Let us know how the mappings go. Quote Link to comment Share on other sites More sharing options...
KYGENIE Posted September 21, 2016 Author Report Share Posted September 21, 2016 Hi Mary Beth and Adam, I'm in Central Kentucky--thoroughbred country--but I was born and reared in the mountains of Eastern Kentucky. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted September 21, 2016 HearPeers Heroes Report Share Posted September 21, 2016 I've traveled through there. Beautiful area. How is day 2 going? Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Ivana Marinac Posted September 25, 2016 HearPeers Heroes Report Share Posted September 25, 2016 Hi KYGENIE, I am not a CI implantee, but I could bet I have also (like Mary Beth) read a testimony of person who also started very poorly but at the end, it was a success. I would bet it was on the forum AllDeaf or similar.... I remember very vividly of the aforementioned story because it puzzled me also. Lots of hearing exercising was mentioned... Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Adam Posted January 29, 2017 HearPeers Heroes Report Share Posted January 29, 2017 Kygenie i wanted to check on you to see how things are progressing. I hope things are improving for you. adam Mary Beth 1 Quote Link to comment Share on other sites More sharing options...
Ken T Posted July 9, 2017 Report Share Posted July 9, 2017 I was activate May 23rd. I hear a humming all the time, I hear noise, can not understand any speech. When will be able to hear and understand speech? Quote Link to comment Share on other sites More sharing options...
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