I made it through

[violinmemories]

On Tuesday, March 5th I underwent surgery on my left ear for a CI! I did have some issues which made the surgery longer than what I was expecting (3 hours). One of the issues for me was intubation, it took longer for the anesthesiologist to intubate me due to my small airway and skeletal dysplasia. Also my body was not still during the drilling and that made it a little more difficult for the surgeon using the microscope. I was kept overnight to monitor my breathing and I came home Wednesday. I am still taking it easy, today was the first day I was able to shower and believe me the water felt so good. So far no swelling around the site, I have an appetite but still eating soft foods as my tongue is still sore. Throat is getting better though.

I have a post op appointment on Wednesday March 13th. Slowly recovering and able to move around, no dizziness but I have the tinnitus and it is starting to go away slowly. Anyways, just wanted to share the good news with everyone. Oh the surgeon got all the electrodes in the ear!! Activation is March 27th at 9am.

 

Mere

[Adam]

CONGRATULATIONS!!!!!!!!!!! I know you have to ba happy to have that behind you!! have patience as you wait for activation. Please keep us updated on how things are going. When is activation?

 

Adam

 

[violinmemories]

It's been 10 days sine my surgery! Hard to imagine 10 days out. I am doing very well. I had little to no swelling (kinda hard to figure out considering my ear is numb from the surgery). I was expecting to have a lopsided head when I looked in the mirror but I don't, even my mom stated your head looks normal. My brother came home and said "I can't see the scar or where it was shaved. My sister is here spending a few weeks with us along with my 17 month old nephew (a bundle of energy).

 

I had my post op appointment this past Wednesday and everything is going like clock work. My ear is healed, I'm not dizzy, just off balanced a little (when I get up from a position too fast). My activation is March 27th so it will soon be here!!!

 

Compared to other surgeries I've had in the past (orthopedic) this was a piece of cake, and compared to the shunt surgery I had last year, there is no comparison..last year I was in major pain for almost a month and it took about 2 months for the scar to completely heal. I'm slowly getting stuff together for my activation, just ordered a journal and pens. Of course I don't know what is included in the box of magic I'm getting so it could already have those things in it, just wanna be prepared.

 

My energy level is back on track for the most part - and than after spending 10 minutes chasing after my nephew and telling him 'No, put that down or come here" my energy level is zip, nada, zero!

 

Mere

 

[Adam]

AWESOME!!! sounds like  things are going very well for you. You mentioned a shunt, may I ask are you hydrocephalic?

wow the 27th will be here before you know it!

 

Adam

[violinmemories]

Adam:

At this point I'm not sure what it it's called. I suddenly (well over a period of months) developed migraine like headaches, was on different migraine meds, had suddenly left side paralysis with no cause found, my optic nerves in both eyes were being affected and one Sunday I actually lost my vision! Went to see the eye doctor who noticed something off so they sent me to see a eye specialist. This guy noticed blood behind the eyes and had me see another specialist. January 2012 I went to see this guy at his office in another state, and he saw me and admitted me to the hospital right away.

 

I wasn't showing anything on the CT scans, so they didn't know what it was..but a spinal tap showed my pressure to be sky high...the next day I had a shunt put in...almost immediately my eyes cleared up, my migraines were gone, no more left side paralysis. So to be honest I'm not sure what the reason for the shunt but I know it saved my life.

 

Mere