Lemi J Posted October 14, 2016 Report Share Posted October 14, 2016 Am a Nigerian with SSD (left) with progressive hearing loss on the right coupled with Tinnitus. Currently a HA user on my right ear to amply sound so I can hear from my left (SSD) side. For 15 years left side has been bad diagnosed with severe sensorineural hearing loss unable to use mobile phones or ear phones on my left ear, if I do all I hear are wobble noises unable to systematically understand the words or sounds but I hear wobbles however meaning its not dead. Been living with this challenge for 15years. I have made my choice to go with the Med El Synchrony implant and Rondo audio processor. One thing peers on this forum should know is being in Africa with a hearing loss is much more difficult than foreign/developed countries, using a HA be it BTE or IIC (Invisible In the Canal) the stares, questions and weird eye contact from people, coupled with high level of ignorance by Africans as regards modernized technology and devices in general makes we hearing aid users look and feel awkward. For me hearing is priority as I need to hear due to my position and nature of Job but these ignorant people in my country makes it even seem abnormal coupled with a bit of discrimination and filthy pride (thinking they are better than us with hearing issues). - simply disgusting but I don't care, I need to hear and be successful as I work hard to be at all times. As regards CI, I have chosen to have a Med El CI on my left ear but these are the challenges we face down here in Africa. 1. No form of proper Insurance so individuals/family's bear all the cost and in full cash payments 2. Surgeons have to be flown from a foreign country to perform the surgery here in Nigeria as there seems to be no local surgeon with CI implant experience (additional cost to the individual/family), making it hard to even certify which surgeon been flown in has proper track record of CI surgery's (almost a risk if anything goes wrong) 3. Little knowledge on activation/rehabilitation centers for mapping and programming 4. Poor or zero access to incentives like free BTE or Rondos etc....after paying such huge amounts without insurance Even if I can afford my CI with raw cash I cannot get my implant or surgery date because Med El says its not cost effective to have a surgeon fly down to Nigeria to perform a single surgery and has to be nothing less than 3 patients. So where 2 other patients don't surface for a similar surgery am on a waiting list like forever whether I have the money. It's really hard being an African in general terms, because things just don't work out systematically and I cant seem to understand why the continent which I found myself is just filled with enormous issues. How can Med El look critically at this African region, there are a good number of us that are well educated and foreign exposed but choose to remain in our fathers land, but with limited access to advanced products and services (such a shame). I have spent cash on hearing consultants like Harley Street hearing at West End in London but I cant afford to sit in the UK or USA for 3 months post a CI surgery due to my tasking job and position, hence the need to be in Nigeria for this CI surgery. Peers is the CI worth it? I hear quite well with my HA on my right ear but once taken off feels like a disaster. Also I hear quite (I mean quite) ok without my HA on my right but has anyone experienced a depreciated hearing loss without HA anytime he/she has a few alcoholic drinks? when am without my HA and I have a few beers or spirits, my hearing diminishes but after a day or two it restores to its normal level...that's just a bit weird so it prevent me from even having drinks with friends asides a noisy social environ and when I wear my HA its just so much noise and unable to hear speech. So I know I need a CI to manage all these challenges but then one hurdle after another yet seems Med El ain't helping out with incentives or even milestone payments....Geez what a life Med El should look into these for the African region and provide incentives like free audio processors once you can at least pay for one processor and the implant, also accessibility to spares and all is another issue....still waiting for my surgery date as its definitely not in my perspective so am just hopefully. Peers we need to shake Med El up for the African region, its crazie I tell ya....... Quote Link to comment Share on other sites More sharing options...
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