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Will have surgery but want to know if sonnet is the best for me


Lila Taweel
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Hello,

 

I have had an implant from Advanced Bionics for 17 years and have been having pain and pressure when I put it on. I have been OK'd for a new implant and I'm heading towards MEDEl Sonnet because of the ability to get an MRI. I am worried that if I get this new implant, I will still have pain since we couldn't figure out why I was having this pain and pressure. It's not from the magnets because I've tried everything to make it as light as possible.

Is Medel better or Cochlear?

Has anyone had reimplantation from one company to another and how was it?

Anyone have pain and pressure from their implant that has nothing to do with the magnets.

 

I am super nervous. THe sooner I pick my implant, the sooner I can schedule surgery.

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  • HearPeers Heroes

I am sorry you are experiencing pain and pressure.  I hope they figure that out for you soon.

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I recommended you continue to try to find the cause of the pain and pressure before getting reimplanted.

Has your surgeon and AB tried to find the cause? CT scan analyzed?

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I agree with hadron.  I would want the cause of the pain figured out and solved before being reimplanted.  Have they taken a biopsy and tested for an infection on your internal implant?  I know someone who had that and it was very painful.  Thankfully it responded to treatment.

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they have done a ct scan and everything was fine. If there was an infection or something like that, the CT scan would have found it.

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They are thinking the implant is causing the pain. It is worrying me that we really don't know from what, but I am taking the doctor and his team's recommendation . He has been implanting patients for 20 years. I don't know where else to go. I will be talking to my neurologist about this next week.

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I am so sorry this is happening to you.  For my friend, they only discovered the infection by taking a biopsy and growing a culture.  For her situation, a CT scan did not help diagnose her infection.  It was an infection on her internal implant.  I think that is rare.  Since that happened to her I have read about it online with various CI internal implants.

 

I sure hope they find a cause of your discomfort so that you can comfortably use a CI again.  That must be so frustrating.

 

I wish you the best.

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It doesn't hurt at all if I have the implant off and it has been this way for months. I'm thinking that if I had any kind of infection, it would hurt all the time??? Is there someplace on line I can read about your friend or can I get a hold of that person so I can see if I have the same symptoms.

 

Thank you so much for your concern.

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I am glad you are not in pain when your implant is off.  My friend was in pain all of the time and even brushing her hair caused extreme discomfort.  She did not post publicly about her experience so there isn't any site to link you to unfortunately.

I am relieved to hear though that your pain is only when your implant is on. (That is bad enough for sure.)

I wish you the absolute best.  Please let us know how things go for you.  I love my Med-El CIs and I hope you will too.

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Lila,

I sent you a message.  Look at the top of the page and click on the envelope to see it.

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Hi @Lila Taweel

Since the CT scan looks normal and you only feel the pain when wearing the processor it probably is the internal component and reimplantation is probably needed.

Sounds like you are a C1 user?

If you got a new AB internal component like the HiRes 90K Advantage you would be able to use the latest Naida processors. Current C1 users are not compatible.

If you got a new Cochlear internal like the CI532, you could use the N6 BTE processor and the Kanso off the ear processor.

If you choose MED-EL you can get the SYNCHRONY internal component which is the only internal which allows 3.0T MRIs without magnet removed. You will also have the availability of an off the ear processor (RONDO) or the SONNET BTE.

All 3 brands make great products.

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  • 4 weeks later...
On 6/22/2017 at 0:56 AM, Lila Taweel said:

Hello,

 

I have had an implant from Advanced Bionics for 17 years and have been having pain and pressure when I put it on. I have been OK'd for a new implant and I'm heading towards MEDEl Sonnet because of the ability to get an MRI. I am worried that if I get this new implant, I will still have pain since we couldn't figure out why I was having this pain and pressure. It's not from the magnets because I've tried everything to make it as light as possible.

Is Medel better or Cochlear?

Has anyone had reimplantation from one company to another and how was it?

Anyone have pain and pressure from their implant that has nothing to do with the magnets.

 

I am super nervous. THe sooner I pick my implant, the sooner I can schedule surgery.

Hi Lila, thanks for reaching out to the HearPeers community. I'm sorry to hear you've been going through a tough time with your Advanced Bionics implant. I would recommend staying in close contact with your medical specialist about the pain you are experiencing with your Advanced Bionics implant.

It's great to hear that you are considering MED-EL's SONNET. With MED-EL SONNET, you can have 3.0 Tesla MRIs without needing to remove the implant magnet through surgery. You can find out more information here: https://blog.medel.com/synchrony-cochlear-implant-system-faq-question-and-answer/ 

As we are not medical professionals we are unable to give you medical advice and tell you what MED-EL implant would be best for you. However I can put you in touch with your local MED-EL Representative, as they will be able to offer you support in finding out what options will be best for you and also will help put you in contact with a hearing specialist. Let me know if you'd like their contact details and I'll send them through :)

I hope the pain reduces as soon as possible for you. 

Kind regards, 

Leigh

HearPeers Community Moderator

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On 6/23/2017 at 9:02 PM, Lila Taweel said:

It doesn't hurt at all if I have the implant off and it has been this way for months. I'm thinking that if I had any kind of infection, it would hurt all the time??? Is there someplace on line I can read about your friend or can I get a hold of that person so I can see if I have the same symptoms.

 

Thank you so much for your concern.

The magnet may be to strong they may need to turn it down

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