HearPeers Heroes Mary Beth Posted October 27, 2018 HearPeers Heroes Report Share Posted October 27, 2018 Hi all, I know several people who have both hearing and vision loss. Some of these people have a genetic condition called Usher’s Syndrome, which presents in several varieties. These friends use cochlear implants. Do we have any members of HearPeers who have both hearing and vision loss? If so, what is difficult for you to do with our CI processors due to your vision loss? I can imagine that changing the Sonnet mic cover and dealing with that tiny pin is quite challenging so it’s great that Med-El is soon releasing a different version of the mic cover which will no longer require removing the pin. Is orientating the Sonnet battery cover something that is difficult? What else is difficult due to vision loss? Hila and Jewel 2 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted January 10, 2019 Author HearPeers Heroes Report Share Posted January 10, 2019 Book recommendation or audiobook recommendation..... Not Fade Away by Rebecca Alexander Excellent story about her journey with Usher Syndrome type 3. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted February 4, 2019 Author HearPeers Heroes Report Share Posted February 4, 2019 Excellent blog by Carolien who is the mother of a little boy with bilateral Med-El CIs and Usher Syndrome Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted May 29, 2019 Author HearPeers Heroes Report Share Posted May 29, 2019 Powerful video! So full of love and hope. follow link scroll down watch the short video http://ushermom.com/post/its-been-three-years/ Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Valentin Posted May 30, 2019 HearPeers Heroes Report Share Posted May 30, 2019 Incredible history, so inspiring Mary Beth 1 Quote Link to comment Share on other sites More sharing options...
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