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Ushers Syndrome

Mary Beth

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  • HearPeers Heroes

Do we have any members on HPs who have Ushers Syndrome or whose children have Ushers Syndrome?

Have you seen the amazing blog entries by UsherMom?

I had the pleasure of meeting Carolien in Innsbruck. She is an amazing person.

Here is a link to her blog.

Hoping 2019 brings a cure for Ushers Syndrome.  


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