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Bi-laterally implanted! 1st in the UK!


sophiea2410
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Hey guys!!

 

All done.. with a struggle Sealed

 

Cant wait for switch on day and for this very sore head to go!

 

Sophs Embarassed

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Hi Guys,

 

Sorry for all the repeated threads! Happy new year to you all :)

 

Ive made a bone bridge twitter account: Sophie Aldred .. @Bonebridge_Deaf

 

Also all the Media Interviews Ive done can be found on my youtube channel: https://www.youtube.com/channel/UCEzQ4BNu9LWPedwe_evJikA

 

:)))))

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Hi Guys,

 

Sorry for all the repeated threads! Happy new year to you all :)

 

Ive made a bone bridge twitter account: Sophie Aldred .. @Bonebridge_Deaf

 

Also all the Media Interviews Ive done can be found on my youtube channel: https://www.youtube.com/channel/UCEzQ4BNu9LWPedwe_evJikA

 

:)))))

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Hi Guys,

 

Sorry for all the repeated threads! Happy new year to you all :)

 

Ive made a bone bridge twitter account: Sophie Aldred .. @Bonebridge_Deaf

 

Also all the Media Interviews Ive done can be found on my youtube channel: https://www.youtube.com/channel/UCEzQ4BNu9LWPedwe_evJikA

 

:)))))

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  • 2 weeks later...
  • HearPeers Heroes

Hi Sophie,

 

excellent step forward for the promotion of the bilateral implantation of the BB in UK.

 

Can you describe here your experience - difference between uni- and bilateral BB from your perspective.

 

Best regards!

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Oh Ivana, Its crazy! I didn't think there was going to be such a big difference between the 1 and the 2 implants.. When I take 1 of processors of now i feel like I'm almost deaf again even though I've managed with just one for 6 months :)

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  • HearPeers Heroes

Incredible Sophie! - just what I feel (even I do not have the other one) in certain situation when I am strongly convinced, now I would need definitely a second implant. Just trying to figure out what is the feeling, because I am preparing for another implant, but I have to wait my insurance company. :(

 

What about levels of loudness? I do not know how technically I would call this but the top value is 4, I am between 2 and 3. Where are you?

I guess it is different situation because I am hard of hearing since Day 1. :)

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I was the same, In certain situations for instance If I went to a restaurant or bar with just the 1 processor it was such a struggle, not tried it out with 2 yet I'm still recovering, but the difference between the 1 and the 2 is unreal! I hope your Insurance company is quick. Its the best thing I ever did :)


I don't know what ypu mean by levels of loudness? I just know I can now hear well :) I've also been hard of hearing since day 1 but not profoundly deaf,  I've always had operations since day 1 or some sort of aid of hearing but they cause constant infections. Life begins at 23. Cant wait :))

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Hi !

 

Yes, 2 BBs are the best. If I put off one of them, its like you are really deaf. Only with 2 hearing aids we are perfect.

 

I think, Ivana means the setting of "acclimatization level". I'm on 4.

 

Thomas

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Yes Thomas!

- I have been talking about the Levels of acclimatisation. In the middle of the process we started to wander so I have lost a path...:(

But I am back in the saddle now :D

 

Right now, my biggest problem is to gather enough documentation to persuade in favor of the process of the implantation.

I feel little bit confused because BAHA has shown already benefit of bilateral implantation...

Loosing little bit the direction of my compass however...:(   You know that feeling when you know the moment when you're right....

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  • HearPeers Heroes

 

I was the same, In certain situations for instance If I went to a restaurant or bar with just the 1 processor it was such a struggle, not tried it out with 2 yet I'm still recovering, but the difference between the 1 and the 2 is unreal! I hope your Insurance company is quick. Its the best thing I ever did :)

I don't know what ypu mean by levels of loudness? I just know I can now hear well :) I've also been hard of hearing since day 1 but not profoundly deaf,  I've always had operations since day 1 or some sort of aid of hearing but they cause constant infections. Life begins at 23. Cant wait :))

Thomas described it better - levels of acclimatisation when certain group of people, who were hearing deprived for long amount of time, have to regain normal hearing neuroplasticity. This actually means, for instance, if I was tuned 2 months ago during this period I might develop "sound softening" and feeling like every sound became quiet and words became heavily understandable.

 

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  • 4 weeks later...

Hi Sophie, I hope you've been getting on well with your new BoneBridge.  I live in Scotland and have been offered to be assessed for the BAHA (I would need it in both ears too) but for obvious reasons am much more interested in the BoneBridge although I've been told that it's not available in my region and that I would only be considered for the BoneBridge (available in Edinburgh/Midlothian) in exceptional circumstances.  Ie. it is a more expensive procedure and probably the doctors cant be bothered with the inter-regional bureaucracy.  I wondered what process you had to go through to first be considered a candidate and then how long it took etc, did you have any special circumstances or was it just offered to you.  I am desperately trying to find a better solution as I have a history of mastoid infections so am pretty turned off by the prospect of an open screw in my head.  Any advice appreciated!!!  Thanks

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  • 2 weeks later...

Hi Joanna,

 

Sorry I've only just seen this. I had constant infections from grommets, t-tubes and hearing aids so thats why I was referred to a bone anchored specialist. I was seen by the surgeon and implanted both sides within 10 months :) Funding from the NHS had to be applied for though.. The bonebridge is about £10000 an implant and the Baha is about £8000 so there isn't much difference especially when the infection risk is much lower on a bonebridge. I chose the bonebridge because of the same reason your thinking.. I didn't fancy a screw poking out of my head.

Add me on fb if you like Sophie Smally :)

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  • HearPeers Heroes

Hello Joanna,

 

pardon me for intruding your conversation - I am not from the UK so I do not know anything about the NHS administration but need to correct a data: now there is BAHA without abutment but the operation is not less invasive so I do not understand the reason your doctors states that the Bonebridge is more special procedure. :)

 

BR.

 

Ivana

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