rogerwhitson Posted May 30, 2021 Report Share Posted May 30, 2021 Hi everyone, I have single-sided deafness in my right ear from an autoimmune disease flare almost 20 years ago. Then about 13 years ago, I had another flare that attacked my left ear, and then another one in my left ear 3 years after that. I almost took part in one of the early single-sided deafness and CI studies in 2009, until it was determined that my left ear hadn't yet lost enough hearing. Then and now, I have a mild hearing loss in the left ear. My hearing has been mostly stable on an immunosuppressant since then, but my doctor has recently becomed concerned that my drug might be losing its effectiveness. I haven't had any hearing attacks yet, but I have PTSD from those hearing loss episodes and I want to be proactive. I've noticed that the FDA recently approved a Med-El CI for single-sided deafness, and I wonder if it could help me. I've been deaf in the right ear for almost 20 years, and I noticed that a few studies have noted that the length of deafness often coincides with the success of the device (or lack thereof). Have any of you gotten implanted due to an autoimmune disease? or several years after your deafness occurred? How has it turned out for you? Quote Link to comment Share on other sites More sharing options...
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