Hima Posted February 22, 2021 Report Share Posted February 22, 2021 Hi all, can any one please let me know if you have experienced this situation. my daughter has cochlear implants for both the ears. Left ear surgery done in Jan 3019 & right ear surgery Nov-2019. Everything was well until last month. Since 3 weeks she is complaining of pain on her right side with/without using processor. We gave a break of 2 weeks by not putting processor, changed the magnetic strength, reduced the program but she still complaining of the pain. her ENt and audiologist do not find any infections/swelling and hence they did not suggest any medicine. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted February 22, 2021 HearPeers Heroes Report Share Posted February 22, 2021 @Hima I am sorry your daughter is experiencing this. Which processor does she use? I have a friend with a different brand of CI (not Med-El), who experienced pain like you describe. Her CI surgeon scheduled a biopsy and sent the samples to be analyzed. Turns out she had an infection that grew on her internal component. She was treated with strong medication which thankfully resolved the problem completely. Wishing your daughter the best. Quote Link to comment Share on other sites More sharing options...
Hima Posted February 22, 2021 Author Report Share Posted February 22, 2021 Thank you for your response. She Uses both sonnet 2 and ronda-2 for her right ear. did your friend had swelling which can be identified by looking? My ENT doe not see any sweeping and is considering there might not be any issues but daughter is complaining since 3weeks Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted February 22, 2021 HearPeers Heroes Report Share Posted February 22, 2021 @Hima My friend did not have any noticeable swelling. She had pain. It was painful with her CI on and painful with her CI off. It hurt a lot when touched. Brushing her hair in that area was very painful. She could no longer sleep on that side of her head. The CI surgeon could not find the problem until he did the biopsy and sent the samples away. Quote Link to comment Share on other sites More sharing options...
Hima Posted February 22, 2021 Author Report Share Posted February 22, 2021 Thank you. I brush her hair very lightly but she is not allowing me to touch the CI part and since yesterday she is complaining of her right eye and eyebrow pain sometimes she complain of dizziness and heavy head Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted February 22, 2021 HearPeers Heroes Report Share Posted February 22, 2021 @Hima I hope you can get another appt soon. If it was me, I would call today. Wishing your daughter a speedy recovery. Quote Link to comment Share on other sites More sharing options...
tmscarlett10 Posted April 30, 2022 Report Share Posted April 30, 2022 I regret to admit that this is the reason that I signed on today; hoping that someone might - rather might not - have written something about this topic. I have started feeling pain on the magnet area on my had, since the last couple of days. It hurts mainly when touched. I want to try leaving my processor off for a couple of days, but I can't until about two weeks from now because of work, and appointments on days off. I have recently changed jobs and have to wear a baseball cap, so am putting the processor (Rondo3, Magnet 1) on the outside. So, I wonder if maybe the magnets are working harder, due to the thickness between the two, to try to stay connected? Is that possible? I plan to call my audiologist on Monday. @Hima, how is your daughter? Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted April 30, 2022 HearPeers Heroes Report Share Posted April 30, 2022 @tmscarlett10 @Joan has a technique that works to make her magnet 1 less strong I am glad you plan on contacting your audiologist as pain at the implant site is important to get resolved fast. Quote Link to comment Share on other sites More sharing options...
Joan Posted April 30, 2022 Report Share Posted April 30, 2022 @tmscarlett10 As @Mary Beth mentioned, I wear Rondo 2s with magnet 1 and experience irritation and tenderness on one side. (FYI, I had the same problem with my Rondo 1 and used a piece of moleskin held in place with the “acrylic bumper” that was available for that processor. Unfortunately, there is no bumper available for the Rondo 2 or Rondo 3.) I found that putting 3 GripWear (one on top of the other) on that processor to keep it slightly raised has eliminated the problem. I change them about once a month. I purchase them from the Med-El store. Another solution my audiologist suggested is to use a Cochlear (brand) SoftWear Pad. She gave me a few to try and I found they work well too. I’ll be at the chat tomorrow if you have any questions. I hope you find a solution soon! Mary Beth 1 Quote Link to comment Share on other sites More sharing options...
Hima Posted January 25, 2023 Author Report Share Posted January 25, 2023 @Joan,@tmscarlett10 @Mary Beth I hope you all doing good. was there any improvement with the pain. My daughter started getting pain more frequently on her right side She got her left CI in Jan 2019, Right CI in Nov 2019. there are no issues on left side but her right side having problem and here is her history. Jan2023: >>Pain in the right side magnet area even without wearing the processor >>Sometimes having shooting pain >>ENT suggested to turn off the processor for a week Nov 2022 to Jan 2023: >> Shooting pain >> continuous pain and she used to turn off her processor for couple of hours and then wear it next day ( this repeated for 2 months) Sep 2022 >> Swelling on her right side magnet >> ENT prescribed antibiotic >> processor was off for 1.5month Feb 2021: >> had pain for 3months.. >> ENT suggested turning off the processor and it was off for more than 2months. Does any one faced or came across this issue and please share me the details Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted January 25, 2023 HearPeers Heroes Report Share Posted January 25, 2023 @Hima a friend had this experience with her CI which was a different brand. Her doctor took a biopsy and the results showed a biofilm infection on her internal device. Quote Link to comment Share on other sites More sharing options...
Hima Posted January 25, 2023 Author Report Share Posted January 25, 2023 @Mary Beth can you please share more details on this. how the biopsy was done and what was the solution suggested for biofilm infection. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted January 25, 2023 HearPeers Heroes Report Share Posted January 25, 2023 @Hima Sorry. That is a question for a medical team. Quote Link to comment Share on other sites More sharing options...
Hima Posted January 25, 2023 Author Report Share Posted January 25, 2023 @Mary Beth Thank you Mary Beth 1 Quote Link to comment Share on other sites More sharing options...
tmscarlett10 Posted February 2, 2023 Report Share Posted February 2, 2023 Hi @Hima I would definitely follow Mary Beth's advice to talk to the doctor and this situation. However, to answer your previous question, I found the use of padding between the processor and my head helps extremely. My doctor said that I have very thin skin; this may also be the case with your daughter but consider every possibility. I use either moleskin or Softpads from Cochlear, and it really does help. I hope that all turns out well. Mary Beth 1 Quote Link to comment Share on other sites More sharing options...
Jimit Posted January 5 Report Share Posted January 5 I have been using the Softpads from day 1. I have been given a strength 5 magnet in my Rondo 3 and within a few hours of wearing it, I had to call my Audiologist as it started paining. He suggested using the cotton gauge or soft pads, I have used it since then. We reduced the magnet strength to 3 but still, it hurts after a few hours. I don't want to go down on Magnet now and having a Softpads in between does the job for me. Joan 1 Quote Link to comment Share on other sites More sharing options...
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