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Single-sided deafness


VRobles
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44 year old male. I have lost my hearing in my left ear one month ago did the steroids orally but has not worked ear doctor didn’t think injections would help. My other ear is ok. So I’m thinking of a CI but don’t know much about them. I read people talk about how they hear sounds but my concern is words that is what I want. Does it sound different than the good ear or do they blind together? I’m so upset now seems like there’s not much that can be done. Asked if I could do the steroids again they said it’s for only two weeks

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@VRobles

Welcome to HearPeers.  We are a friendly group.  Feel free to ask questions.

I will tag @Kylie and @Jared Charney as they both have single sided deafness with a CI.

 

Wishing you the best!

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Thank you it would be great to talk to someone about this don’t know if I should see another ENT and see if they will give me the steroids. I had a very small stroke that caused me ear to loose hearing October 1. My family Dr. didn’t think it’s a good idea to take the steroids again having had a stroke. The ENT said he advised not to do the injections because if I get the CI you don’t want to take the risk of the injection holes not closing and getting infections.

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I also had a sudden hearing loss with an inner ear infection and only a brief course of steroids. I was then told i was left with whatever heading I had, though give it a few weeks to see if it will resolve further (it didn't). I had lost it all though my other ear was still normal in luckily.

After getting used to the CI, which does sound strange at first, I now have just 1 'sound' with the 2 sides together. I don't even remember I'm wearing it most of the time, it feels natural. I have had it for 2 years.

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@VRobles

Music, TV and movies sound great with my bilateral CIs.  Music took its own journey after activation and took longer than speech to sound good but now everything sounds very natural.

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Listening with both ears (hearing ear + CI) = normal and amazing for TV, movies, live entertainment music. Love everything I hear.

Just CI (blocking other ear) = 'pretty good' for TV and movies, 'quite good' for music but still improving. I only use just CI side when I am doing purposeful practise to make sure it keeps improving. Day to day when I'm at work or with my family etc I use both sides together.

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I'm imd 40's and have had chronic ear infections my entire life. I got Meniure's disease and went deaf in my L ear over about 8 months ending right before COVID (still have tinnitus though!).  Unfortunately about six months ago my balance system also started going haywire and my neurotologist and neurologist are fighting about whether its Meniure's or migraines.  I'm having a estuation tube dialation + metal ear tube surgery done in a few weeks, and then will schedule a combo cochlear implant and labyrinthectomy (combo) after that heals.

I must say that reading all of the reports, post surgical situations, etc. on this site is really encouraging.  Thank you everyone for sharing.

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@Sgent

Welcome to HearPeers.

I had a labrynthectomy on my right side to stop the Ménière’s vertigo issues.  Then that ear stayed completely deaf, processing no sound at all, for 24 years before being implanted.  It is an amazing CI ear.  It is great that surgeons are now doing simultaneous transcanal labrynthectomy and CI implant surgeries.  Which CI center do you go to?  I go to New York Eye & Ear in NYC.

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@VRobles

 

Yes we have other single sided deaf with CI members.  Hopefully you will hear from more soon.

Maybe @VeroNika  and @Gemmawill have time to chime in?

Have you connected yet with your regional Med-El rep?  They will be able to put you in contact with other single sided deaf with CI users.

 

Have you seen these?

https://blog.medel.com/a-hearing-therapist-chose-med-el-for-single-sided-deafness-ssd/
 

https://blog.medel.com/10-things-that-may-surprise-you-when-you-get-a-cochlear-implant/

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6 hours ago, Mary Beth said:

@Sgent

Welcome to HearPeers.

I had a labrynthectomy on my right side to stop the Ménière’s vertigo issues.  Then that ear stayed completely deaf, processing no sound at all, for 24 years before being implanted.  It is an amazing CI ear.  It is great that surgeons are now doing simultaneous transcanal labrynthectomy and CI implant surgeries.  Which CI center do you go to?  I go to New York Eye & Ear in NYC.

The otologist I have been seeing is out of Ochsner in New Orleans, and I like him.  He does a mix of cases, whereas the LSU otologists mostly work out of the children's hospital.  I still want to talk to him about his / the centers numbers before scheduling the surgery, but will probably go with him unless I see red flags.  I know they are are on the list for all three implant makers.

Sgent

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